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Hi all, just been recently diagnosed with a my third brain tumour. Original pathology was deemed although not 100% but named Angiomatoid fibrous Histiocytoma . this was at 13 and told to use scanning and monitor but it came back at 19( full resection...
Hello all I've been diagnosed with an astrocytoma grade 2. My surgeon has said that he did an 100% resection of the tumour so I don't need radiotherapy or chemotherapy due to being under 40 aswell. I'm 8 weeks post surgery and I'm still absolutely exhausted...
He is so moody but then he follows me everywhere. He really misses having a licence after surrendering it, but he thinks because he's not had any seizures since the op he takes the car out. I darent report him. I love him but he's so so childish but I...
A friend of mine, who I met through my cancer journey, has the same staged astrocytoma as I do. However she has been told that hers is inoperable due to its position and location. She has never had a craniotomy to remove the tumour, only a biopsy. She...
My husband has just been diagnosed with stage 4 brain cancer and we are both absolutely devastated and terrified. He was diagnosed with stage 4 skin cancer just over a year ago and has successfull managed to beat that with immunotherapy but unfortunately...
My dad has recently been diagnosed with Geo blastoma after a seizure one of the things we are really struggling with at the moment is his difficulty initiating. For example, he had a hospital appointment today and we managed to coax him out of bed to...
Hello My darling husband R has been diagnosed with Glioblastoma IDH WIldtype Grade 4, we start chemo/Radio next week for 6 weeks 5 days a week, not sure it has sunk in yet for hubby he’s very quiet, me I’m a mess scared for the future and worried about...
Hi, my brother has a brain tumour. He’s doing so well and he’s being called a long term survivor. While this is great I’m looking for advice on how to deal with a new development which is inappropriate sexual behaviour. Family members feel assaulted when...
My wonderful husband has now passed after a courageous fight over 21 months. There is no relief , no idea what to do now or how to continue without him, such a waste of life. This pain is real. My heart goes out to all who are living with this , they...
Hi all, Saturday was a hard day, I knew my mam wasn't right she hadn't been right for a few days, she looked flushed she was in pain, I spoke to the nurse, she said she ok, I blew I says she's not she's in pain I know her better than anyone. I says...
