I had a siezure back on the 4th June 2021, and I was diagnosed with a grade 3 Oligodendroglioma. I then had surgery at Kings on the 21st July 2021. 70% of the tumour was removed and I was sent home to recover. I then had six weeks of radiotherapy and...
Good afternoon everyone, I sincerely hope that you are all well. I registered with the site and have also used the online chat facility this morning. After more than three months of specific health issues, I ended up taking my partner to our local A...
Hello My dad was diagnosed with glioblastoma stage 4 (suspected, we did not do a biopsy) end of August. He is 80 so decided he did not want any treatment, so just takes steroids and anti-seizure meds. He has been getting more and more tired and confused...
Hi, just after some advice or guidance or anything really that might be helpful. my dad had a brain tumour removed little over a week ago, he came home a week after his procedure and the first night everything was fine. the second night was completely...
Hi everyone, We just wanted to highlight Wee Me's guest blog for Community News. Wee Me is a member of this group and Community Champion. Wee Me has written a blog about coping with what might be "last" celebration with a loved one. You can read...
My son has brain cancer and our journey so far has been longer than most. He has anaplastic ganglioglioma, we are very lucky in that respect. Very slow growing. We have the time to grieve, be strong, be scared, be positive, be helpless, be the polished...
I have my first Neuro Consult next week since diagnosis. Is there any recommended questions you would ask? As yet I have no ideamof a treatment plan although ENT initially said an op or radiotherapy.
Hi all, I’ve recently finished my chemo after having radio before Xmas last year. I have an oligodendroglioma…..my hair is growing back (yey)…but it’s curly! My hair is poker straight! Help! I'm not sure how to style it! X
Hi everyone I’m posting to find out about people’s experiences with the level of treatment and care from James Cook University Hospital in Middlesbrough. Last year in May (2021) my wife (30yo) was diagnosed with a grade 3 anaplastic astrocytoma (the...
Gbm is cruel , it’s a harsh illness that robs us of our loved ones. Even with the standard protocol of treatment this nasty illness never goes away or returns with a vengeance. Brain cancer only has one percent of government funding unlike other cancers...
