I have an upcoming oncology appt (originally 14th dec, has since been rearranged twice). Becoming more and more anxious and don't know what ton expect or discuss during the appt? I have grade 2 oligodendroglioma and post surgery nearly 11 weeks. Many...
Hello I live in Northern Ireland. I am recently (oct 2023) diagnosed with grade 2 oligodendroglioma . I had surgery for resection and biopsy very quickly which was scary but great! Post op o lost all power and mobility left ahdn side of body, alongside...
Hi I’ve put this in the welcome page but though I’d put it copied in here and my progress. Hi all, just a greeting and to see if there are any diagnosis similar to myself. I have a grade 3 astrocytoma cdkn2a/2b. I discovered or should I say symptoms began...
I’m new I’m Claire I’m 42 and have only just got my news so here I go sorry if this is a little all over the place. I’ve had seizures for the last 2.5 years and had a MRI back then and was told nothing was abnormal on my brain. The seizures were full...
Has anybody else been asked for a pip review mines gone missing apparently even though I sent it in the time frame given I’ve asked for an 2 week extension which ran out and now I’ve been given another two weeks and new forms sent out. But looking online...
I should put still missing off the system the old brains getting a bit confused lately
Hiya. My mum has had lung cancer for 2.5 years finished all her treatment in august - and cancer stable and shrunk - then a couple weeks ago - mum was poorly - confirmed brain met, - she is starting full head of radiotherapy today - 5 sessions - does...
Hi all I received a call just 2 days ago saying I had a brain tumour that needed further investigation and am currently waiting for a neurology appointment. Does this mean I have had the diagnosis? Now just need further investigation for the type...
Hi there, I’m new here - my mum’s metastatic breast cancer has recently spread to her brain and things are progressing very quickly. Her balance and mobility is being significantly affected so my dad and I would like to get a stairlift fitted to help...
My daughter and a 24 and had debulk of a stage 2 brain tumour done back in April , had 6 weeks of intensive radiotherapy which after week 3 caused her hair loss, she’s been suffering from focal seizures and has had a couple of unconscious seizures all...
