My wife has completed 20 cycles of brain RT and 10 more cycles to go. she has been on 2 mg Dexamethasone since November. Will they stop it after finishing RT, can she take 1 mg( half tablet) from now and stop it after RT finishes Or will they continue...
Hello there... this is my first post in the group . I've read through a lot of the post but don't see many of you talking about the symptoms we have to deal with because our brains are a little mashed! At the start I couldn't walk, talk properly...
I'm on treatment 22, with 8 left. The last few weeks , I've felt fine, abit frustrated at how well I've been, but then took ill and was really sick and admitted to hospital for a week. After scans they found more swelling and another bleed. 1 week later...
I posted in here about my daughter - late 20s, two young children - and her grade 4 terminal glioblastoma. The response that I had from the community was beautiful and helpful. Thank you. But, the update is not good... After 30 sessions of chemo and...
Hi my 19 year old son has just had a Medulloblastoma tumour removed and is going through radiotherapy atm. We are devastated by his diagnosis and as this is usually a child’s tumour type haven’t found any adults out there with the same tumour yet??...
Hi everyone. I'm new to the forum and thought I would briefly say hello and ask some questions if I may. Back in July 2023, my Mum was diagnosed with a low grade glioma by the temporal lobe. She had had a couple of seizures which lead to a referral...
Hello everyone, Thank you for taking the time to read this. All your advice is appreciated. My best friend (also ex, housemate and we are each others next of kin so I will be looking after him through this - just to add even more complication!) has...
Hi, My (male) partner is currently undergoing chemotherapy (temozolomide) for a brain tumour. We have been vaguely told that we must use barrier contraception to avoid a) risk to me from possible transmission of chemo into semen, and b) risk to...
I have recently been diagnosed as grade 2, and had neurosurgery where 90% of the tumour was removed. I know chemo and radio are likely for the future but worrying if this means now or years down the line. Does anyone have specific experience of grade...
Hello there everyone! I’m new here My name is Leah and I have a grade 3 anapalastic astrocytoma brain tumour. I had surgery May and I’m currently having radiotherapy 5 days a week, I’m on week 3 of 6 1/2, then I will have a year of chemo. If anyone...
