I am on the waiting list to have a meningioma removed. Does anyone know whether I will have to be awake for the surgery?
Hi, I was diagnosed with a grade 3 right temporal lobe Oligodendroglioma on June 4th 2021. I had surgery, which removed 70% of the tumour. I then had a full treatment of radiotherapy I couldn't receive chemo as I had a elevated ALT levels from my liver...
Hi, does anyone have any information regarding CBD and the affect’s it has while going through radiology and chemo. thanks x
Hi, my family member has a grade 3 Oligodendroglioma and has the choice of an operation at either Kings hospital London or NHNN (UCL) Anyone have any experience of either hospital that could help us to make the decision. thank you
Hi. is there anyone who has been diagnosed with this? I literally woke up 2 weeks ago completely deaf in my left ear. After a long gp and A&E day I was seen as an emergency in an ENT clinic for emergencies. they thought I had had a virus or a stroke...
Hi everyone, This is my first post so will give a bit of background, I started having severe headaches in 2021 when I was diagnosed with COVID but they didnt stop after I recovered from COVID, I felt sick and struggled to eat and had periods where my...
Hi, A close family member is just about to start treatment, for a grade 3 Oligodendroglioma. they will be having surgery, chemo and radiotherapy, but just wondered what else we could do to try and help. I have read a bit about CBD and turkey tail. Can...
My husband was diagnosed over a month ago with glioblastoma Grade 4 and underwent surgery to remove the tumor as well as further post-operative surgery to remove infection caused by the first surgery and a course of serious anti-biotic treatment. He is...
Hi all. I’ve been on a bit of an emotional rollercoaster over the last few weeks as recently diagnosed but I’ve now been told that I have Stage 4 astrocytoma (idh mutant and methylated). I have had mixed views on surgery from the nhs team but went for...
I was recently diagnosed with stage 3 glioma, I had an operation on tge 14th of February, and now waiting to start my treatment soon which is 6 weeks of radiotherapy 5 days a week followed by chemotherapy up to 12 months, I'm feeling scared of loosing...
