Mobility issues

  • 1 reply
  • 19 subscribers
  • 395 views

My daughter and a 24 and had debulk of a stage 2 brain tumour done back in April , had 6 weeks of intensive radiotherapy which after week 3 caused her hair loss, she’s been suffering from focal seizures and has had a couple of unconscious seizures all off which are side effects of her radiotherapy. She’s on kepra , steroids and another drug for seizures unsure of what it’s called , 

the seizures have damaged her left side ,so she is sometimes feeling off balance and cannot get into the bath or shower without feeling like she’s going to have a seizure, my question is how can I help her in order to be overcome this fear as she currently only has a strip wash and I feel it’s not enough . She needs to be able to wash properly and wash what hair she has as it’s growing back slowly.  Any thoughts would be extremely appreciated. 

  • HI Fisharefriends

    a warm welcome. So sorry to hear about all that is going on with your daughter. I suspect the key here is patience.... endless patience.

    It might be worth a chat with your GP about getting an occupational health assessment to see if they can provide any aids to support her in the bath or shower while she regains her health and confidence. Even something as simple as a stool in the shower to allow her to sit if need by while she gets washed. 

    There's some general guidelines on the main website that might help. Here's the links:

    After treatment | Macmillan Cancer Support

    Supporting someone | Macmillan Cancer Support

    This is a safe and supportive space so I am sure some of the other members will be along shortly to offer their words of wisdom here. You can also reach out via the Ask an expert option within the online community.

    It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

    sending love and light and hugs to you both. Stay strong.

    Love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm