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Hi everyone , I had my TURBT last Thursday and all went well as far as I know , my question is my catheter is so uncomfortable, I’ve had it changed once as it was too big , then it came apart at the valve minutes after the nurse left so I put it together...
Hi there, Just wondered if anyone else has experienced anything similar. Had my 4th BCG treatment today and after holding it for 2 hours and then going to the loo I then felt like needing to wee almost immediately afterwards. Held on for 45 mins but...
Is anybody else finding the website to be unreliable? I often find that clicking on a REPLY button does nothing, then perhaps I get an icon appear that represents my account name, but no actual box to put a message in. After further clicks on the REPLY...
Hi all, like to give you a bit of history how I was diagnosed. Last year I unfortunately cought COVID and was rushed to hospital, as I was vomiting blood and very poorly. That was after I had both vaccines of astro. I was in hospital for three weeks....
My wife had another meltdown, this time about exercising. I'm now 9 weeks post RC & managing 2 walks a day of about 1km each. Morning is harder for me as my wife has me fasting for 16 hours each night, so I'm quite dizzy in the mornings. I have bought...
Hi all, My husband was diagnosed 2 years ago with ca ureter and had his ureter and kidney removed. He then 6 months ago had TURBT for bladder cancer and a dose of chemo inserted and again had this done 3 weeks ago. From the last biopsy he now has been...
May appear an odd question, but there is some logic behind it. I have had (I think) 11 or 12 Flexible Cystoscopies, including the first one where Trevor was first seen. After most of these I have experienced discomfort, and a very frequent urge to dash...
Hi all just a quick question? I have now had 2 years worth of BCG treatment and had my last flexi on Tuesday. I have been diagnosed with BCG cystitis which has been extremely painful for last 6 months or so. Who decides when you can stop the BCG? I...
I'm currently waiting for an appointment with the consultant to tell me what stage / grade of bladder cancer I have. Had a PET scan on Monday as they want to check out a lung nodule as well. Meanwhile I've got pain near my hip bone which sometimes feels...
Hi all, I've signed up for this because my 83 year old mum has just found she's got a bladder tumour that the oncologist describes as aggressive. Until 4 weeks ago she was fit and well, not taking any medication. Now she's struggling to walk more than...
