BCG treatment

Hi Dolphina. I've not had BCG, so no personal experience, but this problem comes up regularly on here and seems to be fairly common. Hopefully someone will be along with some suggestions. Best wishes.

Hi Dolphina
I'm on installation 2 and found that after holding the solution for the 2 hours with no issue when I emptied my bladder I needed to go again every 30 minutes as was passing blood clots which was very similar to post op after catheter removal. I've found that ibuprofen and paracetemol help me and also avoiding alcohol and caffeine. I hope you are feeling better and take care.

Hi Stu,

Thanks so much for your reply, information and advice I really appreciate it.

I took paracetamol for a couple of days and that definitely helped and I started to feel better by Thursday so hopefully the next one isn’t as bad.

I hope all goes well with your treatment for you too and take care.

Best wishes 

Dolphina

Hello Dolphino/ Big Jock, glad to hear you are both coping well with the instillations. Each of us are different so some of us can tolerate BCG better than others. Personally I came through the first six quite unscathed, in fact I was a bit concerned that I should have felt more effects than I did. However subsequent treatments did kick in and I did have reactions to it. I have had 14 and now they have halted the installations because of the resulting effects I have had. That of course is not to say that you will mirror what I have experienced. 

If the doctors/nurses have not made you aware already please do watch your diet. I find certain foods/drinks can trigger a reaction with your bladder. Water becomes your go to drink. Do keep us abreast of your progress, there are people on this forum who will always offer their support and advice. We all have things in common so you never feel alone. It helps me enormously.

Take care