When to stop BCG treatment?

Hi Trayliner and welcome to the group, although sorry to hear you are suffering with cystitis brought on with BCG. Although not had it myself, it comes up fairly regularly on here. I believe it is a personal choice whether to continue or stop the treatment and rely on regular check ups. I am sure someone will be along with ideas on helping. Best wishes.

Hello Trayliner, sorry to hear you've had such a rotten time with BCG, I hope at least it has done it's job stopping a cancer reoccurrence? I had the full 27 doses because during the treatment I kept getting small low grade reoccurrences, BUT my team asked me when I got to 18 doses if I would prefer to stop because of latest research implying less doses reduced the damage of the treatment. I have been pretty  fortunate with my reaction to the doses although at my last flexi I was shocked to see I did have a lot of inflammation. Anyway no further reoccurrences in past year. From what I have read I believe stopping after 15 doses is considered ok. Sending best wishes Hx 

Thank you that’s good to hear… Trying to speak to the Urologist is near on possible as I only see them at my flexi and each time it’s someone different.. 

Hello trayliner, I had a total of 14 and the oncology nurse who realised it was causing me aggro through cystitis stopped it. Not sure how many people complete the full 3 years of instillations. Everybody is different so obviously some tolerate it more than others.