Hi all,
My husband was diagnosed 2 years ago with ca ureter and had his ureter and kidney removed. He then 6 months ago had TURBT for bladder cancer and a dose of chemo inserted and again had this done 3 weeks ago. From the last biopsy he now has been told it is high grade and needs BCG once a week for 6 weeks, then review. He was initially upset but is now very matter of fact about it all - he's not a big talker! I'm a mess which I know is mad as its not me thats going through all of this and I keep thinking the worse case scenario. Any advice for us both, particularly in relation to bcg would be gratefully received.
Hi txrawl and welcome to the group. sorry to hear what your husband has been through. It is understandable how you are feeling, but BCG treatment can be very successful. Post TURBT, it is designed to mop up any rogue cells and help prevent recurrences. Many people here have had this treatment and should be able to answer nay questions you may have. Best wishes.
Mr Wilbert was diagnosis with bladder cancer almost 6 years ago He had 24 bcg installations initially a course of 6 followed by courses of 3 over 3 and then 6 months He has remained cancer free since his first.post bcg check He was s higher grade than your husband
He is currently awaiting biopsy taken from his ureter but consultant isnt convinced it will show cancer He thinks more likely stricture caused by previous kidney stones
Lots of people on this site have had successful outcome following bcg treatments Sure they will be along to give their experience
Good luck and best wishes
Wilbert
Have to say Mr W isnt one to talk about it either.I can sympathise with you as I have a tendency to let worse case scenarios overtake my brain
Bcg isnt pleasant Mr W usually has a bad headache for several hours afterwards and 24/36 hours of frequent painful urination but worth it as to date no recurrence
Take care
Love
Wilbert xx
I agree with you there txsrawl. Never forget the power of sharing how you feel on here. There are some proper troopers on here always ready to share their experience, and how they are dealing with difficulties.
My wife has been all over the place since my diagnosis. Many times i have caught her crying alone. It tears at my heart that this has upset her so much. One of the biggest helps has been coming on here and reading some of the posts out to her.
We are both now in awe of how people seem to get on with it. After the intial 'fall apart' so many pull their socks up and press on so to speak.
All the best...Del.
Hi Deloo. You are spot on. When I was first diagnosed I thought the worst. I tried to put on a brave face and cope with my own inner feelings. I also caught my wife crying and realised I was not n my own. From then I was open and honest with all the family and also introduced some humour in to what we had to go through. This broke the ice and got rid of the elephant in the room. It helped everyone talk about it and ask questions without feeling awkward. Best wishes.
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