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Hello All, I was told after my second TURBT that I would have an appointment for results within three weeks but its over three weeks now and I’m still waiting. My initial diagnosis in January was T1G3 so as many of you know the waiting it is an anxious...
Just wondering several things about the after life… 1. Where do you buy supplies? 2. What brand is the best ? 3. One piece or two format on stoma pouch ? 4. Belt or no belt? 5. Concealed wrap around ? I know…..lots of concerns
Hi, Just need a bit of advice or reassurance, I had my Turbt 2 weeks past yesterday and the healing seemed to be going as per the hospitals instructions, but yesterday and more so today I'm definitely seeing blood in my urine, Is this normal I must admit...
Hi, I'm at the point of withdrawing from my program of BCG therapy - I'm 10 doses in of the 21 dose SWOG protocol but the side effects are killing me. I haven't been able to have a satisfactory conversation with my urologist about the pros and cons...
Hello all, so results from 2nd TURBT no sign of any bad cells and still contained within the bladder. 20 weeks since initial diagnosis of high grade non invasive. how time flies. I have been offered a trail process which is called sunrise trial and is...
Hi, hope everyone is well, I got the results today from my last Turbt it was a long 3 weeks wait. I was first diagnosed with a T1 G3 tumour today my CNS said it is now PT1 G3 can anyone tell me what the difference is please, have a meeting with her tomorrow...
I’m due for cancer tests and have had gross haematuria as my only symptom but I am unsure wether gross haematuria will mean a higher grade cancer as I had a lot of blood in my urine when my GP tested it . I am also concerned as my urine flow is now a...
Hello All, I am new to this forum and would like to introduce myself and interact with you all to understand more on the Bladder Cancer and possibilities of a cure. I am from Bangalore, India. I was diagnosed with Bladder Cancer in October 2022 and...
Hi I am new to this forum and have joined as I have just completed my first cycle of chemo. (Big one, small one, week off) I am now in my week off stage. Im on GemCsh I had a very strange but extreme side effect last night, that Ive never felt before...
Hello there Some on this forum have said they have tried / attempting to try iAluril (and Cystitat which I think is the equivalent). The patient is suffering from severe Cystitis (caused by five rounds of BCG) and in enormous amount of pain / urine...
