Can anyone recommend a urologist for an online consultation

Stoical,

Can you ask for a 2nd opinion from another consultant in the same team, that might help.

In the U.K. this is not unusual

cheers Leo

Maybe you could write him/her a letter, asking some specific questions. You might need to wait a bit, but you should get a reply. If not, chase it up via the secretary or PALS department.

Thanks, both good suggestions. I was just a bit bewildered after my last consultation with my urologist. I'd been having these unpleasant side effects and I noticed that the timing of the BCGs was more frequent than the SWOG protocol and simply asked for them to be spaced out to 6 months rather than 3 (because we'd reached that point in the protocol - treatments 10, 11 and 12.) He said, sure fine no problem. When I made an appointment for the treatments, the secretary said 'oh it's just one this time, not 3'. What? And he'd sent a letter to my GP saying I wasn't suitable for BCG because side effects (while simultaneously arranging for me to have one). And it wasn't quite what I'd requested - I asked for them to spaced out a bit more. So it's like we're not communicating very well. But yes, I could maybe email him with one or two very precise questions

My husband stopped at no 11 BCG because of the difficult side affects. That was in May 2021 and he had another all clear last week. He is being checked every 6 months at the moment. There seems to be some uncertainty about how many sessions are needed without damaging the bladder. It took a while but he now gets 6 hours sleep without needing to get up and we hope the treatment he has had will be sufficient.

I hope you get answers to your questions and that the above info helps.