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After 5 long weeks my scan results went up at 5.15pm on the My Chart app and the nodes have reduced to within normal limits. Can’t actually take it in! Of course there is some inflammation on a lung lobe (or words to that effect ) but for the moment I...
Hi everyone. My husband was diagnosed with urothelial bladder cancer a year ago. He is on immunotherapy ( pembrolizumab and enfortumab). He is also on steroids because the immunotherapy has destroyed the part of his pituitary gland that controls cortisol...
My 80 year old Dad has had what feels to us like an incredibly lengthy period of time before being told following a TURBT on 30 April that he has muscle invasive bladder cancer. (I’m not using any technical terms or acronyms yet because months later we...
Today hubby was booked for a TULA for a recurring lesion at 2.30pm. Spent a sleepless night, was getting ready to go. Then an hour before the hospital rang to cancel!! Such short notice. We were not long from getting in the car. He found this very...
Hi I’ve just been told the results today my bladder cancer that’s in my diverticulum that has spread to my lymph nodes nodes is squamous cell carcinoma I was told there is no treatment for this and it’s highly invasive I’m a very fit and healthy woman...
Hi everyone I had a TURBT 4 weeks ago to try and remove my bladder tumour it is in my diverticulum so they were unable to fully remove it my CT showed lymph node spread I go in today to hopefully know more and hopefully find out what the plan next is...
Hello everyone I've not officially been diagnosed yet but got multiple masses in my bladder. Surgeon didn't actually say the word but did say at least stage 2. Anyway onward! Coincidentally I had a breast biopsy last week and today I was told...
Hi, sorry, long post incoming but I really want to find out from others who have been through this, or supported family who have been through this. My mother in law had a biopsy early June, the results were that she has squamous cell bladder cancer...
Hi can someone please give me some help or advice or can confirm what’s happening is normal??. My mum has metastatic bladder cancer which has spread to her kidney and lung. She has received her first round of Padcev and Keytruda. We had an appointment...
I want to experiment with making gluten free flat breads for my son. Obviously want to taste myself but as having chemo need to avoid active yoghurts a key ingredient for some. Any lists of plain inactive yoghurts would be appreciated.
