Hi I’ve just been told the results today my bladder cancer that’s in my diverticulum that has spread to my lymph nodes nodes is squamous cell carcinoma I was told there is no treatment for this and it’s highly invasive I’m a very fit and healthy woman 59 I’ve been nursing 41 yrs just haven’t been working recently due to having my TURBIT done I’ve been so hopeful that I can do something to fight this but with the urologist saying today there’s nothing that can be done that this cancer will not respond to any treatment I’m in bits he said I will get an appointment soon for another CT scan just to check the invasiveness as slim chance they can try radical surgery to remove my bladder surrounding organs and lymph nodes but he said it is not a good outlook as it may have already spread more in my body than they know I asked if I can try Chemo radiotherapy any trials but I’ve been told there nothing that will treat this just feeling very very overwhelmed my uncle died very quickly following this diagnosis I hoped this wasn’t going to be the same for me just nothing can prepare for hearing this but know I just need to keep taking it one day at a time
Hi FiM
I was sorry to read your post and understand how scary things will be right now for you. I hope your scan shows no further spread and you can have surgery.
You mentioned the potential to remove your bladder and “surrounding organs” so I wanted to let you know that I’ve had a similar surgery, and if I can give you some hope to hold on to, my surgery was nearly 6 and a half years ago, though I didn’t have primary bladder cancer.
My story is in my profile if you click on my name, so I won’t repeat here what was removed in my surgery, but it was a lot! However, all the cancer was removed successfully. Just to say our bodies can be amazing in how they adapt, even after huge surgery. I hope it will be possible for you too to come through this.
Sarah xx
