Waiting to go to theatre. Cystoscopy check up.

My 2000ml bag, which I wear night and day, has a compact plastic hangar which I can hang at about knee height during the day (concealed by clothing), or on my wooden bedstead side rail below mattress height at night. The bag tube length is 1.2metres, enabling me to roll from sleeping on my left side, to my right side or sleep on my back. I'm so used to having a catheter that I do not need to use leg straps to prevent the catheter being pulled by moving about when sleeping, but at first I did strap the catheter end to my left thigh to suit sleeping on the left of the bed. This gave extra security, preventing any uncomfortable pulling. I drink 3-4 litres of water per day. The bag has adequate capacity for up to 10hrs sleeping. 

Ha the first night I put the night bag on got into bed and watched some TV and I had filled it in 2 hours  that's how much I was drinking  had to empty it and use a second bag as they gave me single use ones. Got a bag I could empty from a&e while I was there. Tbh even when I've fallen asleep with the ankle bag I wake up if the bag is full so can go empty it anyway. I've just emptied the night bag and done some rearranging to see if I can get more comfy and maybe get a half decent night's sleep tonight. Fingers crossed.

The hospital/A&E 2000ml bags generally have a slightly shorter and less flexible tube than mine, which I get from Coloplast. Sleeping is thus more difficult with hospital bags. I rarely put up with them for more than a night or two. I hope you manage to get a better sleep tonight. 

I am at the end of my tether. I cannot sleep with this bloody catheter in. I've managed a couple of 3 hours max again and woke with an awful headache. It's making me feel ill. 

I literally cannot do anything bar lie in bed. And I feel so ill with this headache this morning which I'm now trying to shift. 

Hi Simon sorry to hear about your challenges iam the same as you sleep problems hope things get better soon this bladder cancer is horrible iam off to hospital today to start chemoradiation think of better stuff i would like to do take care  bud Phil 

Can you snooze in a comfortable armchair? I'll be doing that very soon unless my coffee keeps me awake. I also only had 3 hrs sleep last night because my catheter blocked. I had to get out of bed, carry out a water flush x 3, then watched the pink flow. Great!! Fun times for both of us by the sound of it. Oh to be young again. Ray .

Thanks both and I am truly sorry for you both as well as my self. I mostly do ok with it but this ha tipped me over the edge. Constant pain and uncomfortable no matter what I do. And feels like I was given zero help to deal with it or what to expect. Waiting for a call back from docs to see if they can get on antibiotics asap, cause apparently if I've got an infection then can't have it removed for another week. 

So no end in sight and another week of next to no sleep and feeling down is really not going to help in any way shape or form. 

In 48 years I have never ever had a urine infection, stick a bloody catheter in I probably didn't need leaving in and now I've got one which just exacerbates the problem. It's almost like they have zero idea what they are doing. 

That's a bit grim if you have to face another week of nearly sleepless nights and pain. If you are given antibiotics, there's a reasonable chance the pain will reduce. Small consolation when you just want shot of the thing.