Waiting to go to theatre. Cystoscopy check up.

Hi Simon, I am so sorry you are going through this. You sound at the end of your tether with it all. Could you speak to the CNS and explain all of the issues it has given you ? I would hope they would have some advise or solutions to at least help you get comfortable to enable sleep . Hope it resolves quickly. Have they tested your urine ? Take care 

Simon, sorry to hear about your recent experiences. I had a TURP procedureTransurethral Resection of the Prostate) and have to keep the urethra open by inserting a catheter and urinating twice a week. Honestly, it is not as difficult or painful as you may imagine. My cancer Nurse showed me how to prepare myself and how to insert the catheter quickly and correctly. I don’t even think about it now. It has become part of my life. It is easy, painless and quickly done. Moreover, when I had to have BCG instillations I found the insertions so easy. I hope you don’t have to go down this road but if you do you will find the tenacity and courage to do so. Good luck

Good luck today, Phil. Stay well

Although I'm full of praise for the way I have been looked after by the NHS, I did notice some policy wobbles by different departments in 2018 when I was admitted for blood loss. Urology were concerned about my heart murmur and my very poor condition. Transfusions were not keeping up with leakage from the post radiotherapy remains of my 7cm tumour. Eventually, they decided to perform an emergency TURBT. The anaesthetist had a listen to my heart and said no-problem. After a moderately successful removal of a bit more tumour, I leaked a lot less blood, slowly recovered but my bladder would not fully drain. A catheter was stuffed in. A few weeks later the bleeding returned. More transfusions. Another TURBT. The consultant surgeon said I must not have a catheter afterwards because infection was a concern. A night nurse checked my ability to drain my bladder using ultrasound. I could go a fair bit but there was still around 270ml which would not drain. She disappeared and came back with a catheter. I told her what the surgeon had said but she insisted I needed a catheter. I asked her to get authorisation from a doctor. The doctor told her to go ahead. In the morning rounds by the consultant, he asked why I'd got a catheter. I explained. He was cross and continued his rounds. An hour later a sheepish ward doctor asked if I wanted the catheter removed. I was feeling very tender and somewhat irritated so I told him it was staying in until the scheduled TWOC a week after discharge. Had the TWOC. Passed the peeing performance test and went home. 5 hours later I began to rapidly feel very unwell. I phoned for an ambulance. They suspected that  the catheter removal had  caused a severe infection. Hospital diagnosed sepsis. I had a rough 5 days before an antibiotic was found which slowly pulled me round. They decided that I should keep a catheter to prevent my bladder from flexing as it tended to bleed easily. And here I am, 7 years later, still with long term catheters replaced at 12 weeks or when blocked. For the last couple of years that has meant a replacement at 1 - 8 weeks, governed by blockages. The moral of this tale is that ward medical staff, specialist departments and nurses have slightly different criteria to consider. They are all so busy that these differences can cause friction. Overall though, they are miracle workers. The final twist was that I missed a cardiology appointment because I was in a ward suffering from sepsis. Cardiology took the hump thinking I'd just skipped the appointment. They were quite snotty with their presumably automatic rebuke letters and have not wanted to see me since!       

Sorry Simon, this is your thread but your comment just lit my fuse. I sincerely hope that your lot improves, preferably with the catheter removed this week. Ray

No need to ever be sorry man, it's only natural that these type of threads make people go off on a tangent on their own, it easy done. 

Sorry you are having such a rough time.I hope things improve soon.Love Jane xx

Well been to docs, tip of the old fella is red sore and inflamed, no poop Sherlock, I wonder why that is, hmmmm. 

Pheno summat penicillin for the irritation/ infection for 10 days, another doctor saying why have you got it in it needs removing if causing problems so gonna speak to urology in the morning yet again to try and get some action.  Humpff!!

You would be more comfy without it providing you can still go afterwards.Hope the antibiotics help and you can get some help from urology.Love Jane x

Thank you  Gariv wasn't to  bad back again tomorrow more radiotherapy still its a trip out