Hi all I haven't posted for a while. Post radical cystectomy i failed my CT scan and my left lymph nodes are enlarged and my left kidney . Oncology said I can't have chemo as it does not work on squamous cell carcinoma, which i have. So they booked...
Hi all, I hope you are all doing well. I haven't posted lately so thought I would give you a wee update. Had my 18th BCG yesterday and it has been a right bummer, I have been up most of the night with terrible urgency and burning when I pass urine still...
Hi all, I just wondered if any one had an opinion or knowledge about swimming following BCG. I really need to find an exercise to keep me fit and my local leisure centre has a warm pool, for people in ‘ recovery or with long term conditions ‘ ( who knew...
I'm back again. My husband is waiting for an assessment to see if he is fit enough for his bladder to be removed. He really wants to have it done but he is not eating (only cakes, biscuits, chocolate, sweets etc.) He has no energy and sleeps endlessly...
Hi all, came on to give an update as to where i am on my journey. Have had recurring bladder cancer over the last couple of years. Because i'm checked every 3 months the cancer is noticed early and shows up as tiny dots barely visible to me on the...
Hello, hope you’re all doing well. My mum was diagnosed with T1G3 bladder cancer in September after TURBT (they found a small 2cm tumor that appeared superficial and a smaller satellite lesion)- the samples did not contain muscle - so she had a repeat...
Hi everybody my name is Eric and I have been diagnosed with a low grade bladder cancer today. I have been fast tracked for it’s removal and diagnosis. I have T3A prostate cancer that has been treated with radiotherapy and hormone therapy and now am starting...
Well that was a full days shift. Up at 6 am back home by 6 pm . Rigid cystoscopy with ga found a few red patches but no suspicious area and no recurrence in the bladder. Not an all clear but I’ll try again in 3 months after 3 maintenance BCG .
Have to. decide Either 3monthly flexi checkups and laser any new tumours. OR. meds in to bladder. Once a week for six weeks. Type of med not mentioned yet. Any advice please. Thanks
Morning all, BCG #15 is finally done, had it on September 23rd, so it’s been a long slog…even though I’m not 100% pain free, the little pain I do have is manageable… what I have learnt is that for me what I eat and drink has a big impact on my bladder...
