Assessment fo bladder removal.

I'm so sorry your both having to deal with this. Can't help with your situation much but sure someone will come along soon with something more helpful. 

I do hope he's is able to go down the route of bladder removal if that's what is needed, so fingers crossed he can pass the assessment if that is what he wants to do. 

• I believe it's quite a big op and does take a good while to recover from. But in my eyes if it's going to be the best option then I'd also go for it myself if it got to that point for me. 

Possibly letting people know how old he is and what his general fitness and health is like may help, Also his diagnosis may also help for advice, I assume it's muscle invasive and fairly high ish grade etc based from what you have said so far and the fact that bladder removal is an option on the cards. 

I know you say he's having trouble eating but as you say it could be from the cancer or treatment amongst many things. 

Have you spoken to your CNS team for help and advice, I'm sure they could provide meals in a drink as a potential way to keep his strength up whilst not being able to eat much that he may be able to stomach better. But anything even cakes ets is obviously better than nothing. 

That's all I can really suggest, but I hope for both of you that he can have the op. 

Thank you so much for your reply.  It is muscle invasive and the radiation therapy did not work.

Hi FloGlow,It could well be the cancer.I felt like that before bladder removal.No energy or appetite and rapidly losing weight.I find cheese and /or savoury biscuits helpful when I’m not hungry.I hope the op can go ahead.Love Jane x

Thank you so much for your reply and your good wishes.  It is certainly reassuring that it is not just my husband experiencing this.  I do make sure that he has protein drinks and bars so hopefully he will be fit enough to have the operation.

Kind regards

You are doing your best to help him and it’s brilliant that he has your support.It’s common to lose weight with a cystectomy so it’s good that you are helping your husband to eat and drink more.How are you coping yourself ? 

Thank you for kind message.  I must admit that I am finding it very stressful to see him suffering.  He has had 13 UTIs since February and he has lost so much weight.  He was very fit and played golf three times a week even though he is elderly.  He never seems to be free from pain from the UTIs.

I have to be strong and positive for him but sometimes find it very difficult.  However, we are  very lucky as we have tremendous support from our family.

It must be very difficult and stressful for you.I’m glad you have a supportive family.Do you have an assessment date yet ?