BCG #15 Finally done….

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Morning all, 

BCG #15 is finally done, had it on September 23rd, so it’s been a long slog…even though I’m not 100% pain free, the little pain I do have is manageable…

what I have learnt is that for me what I eat and drink has a big impact on my bladder…Salt and fizzy drinks seem to be to worse things for me…

CNS has told me if it happens after the next set I can have a different bladder wash to help with the inflammation. ( I have no idea what a bladder wash is) 

even though I’m still up 4 or 5 times a night I’ll take that if the pain is low… I can now sleep on my side which also helps…no pain when walking or sitting…

im still drinking 3 litres a day, water and lemon barley…and a red bush tea here and there. I’m on a waiting list for some CBT. (6 months wait) 

I’ve been signed up for a weight management course, plus my GP has got me onto a 8 week gym exercise course…

in other news, The dog is on the mend although we have to make sure he doesn’t jump on and off the sofa..

Mrs Nigel is also on the mend, I think she’s looking to getting back to work..

even though I’m tired, sluggish and heavy I’ll take that over soreness and anxious…

love to all, The Nigel’s.

  • Hi Nigel,

    Glad to hear thing's are improving for you, the misses and the dog.

    I only touch fizzy drinks with Spiced rum in.. which isn't often. I used to drink loads of the stuff (Pepsi Max). I also gave up-orange juice as that hit my bladder hard.

    I would also be interested in what they meant with regards to a bladder wash to help with the inflammation. If you find out please let me know.

    A 6 months wait for CBT isn't great is it. Are you still going to Maggie's?

    Enjoy the BCG break.

    Take care.

    Trevor 

  • Morning Trevor, I will ask my CNS when I see her next..yeah six months ain’t great but at least I’m on the list…I have another anxiety course at Maggies coming up soon…im just waiting for confirmation… the sleeping or lack of it was the killer for me…trying to sleep sitting up was horrible…I can now lay down… makes a big big difference… also being able to hold my bladder for a wee helps…I can put the bottle away in the boot of the cab now..

    cheers for all your support mate, I’ve got a flexi in December so gonna work hard up until then.

    how you getting on? 
    im off to work, so will catch up later..

  • Hi Nigel,glad things are finally moving in the right direction and you are getting some relief. Its been a long slog since sept ! I assume it will be march before your next lot , so hoping you get a good break now. 

    Nigel, you are doing all the right things and making some changes that hopefully will make this rollercoaster of a journey a bit easier to cope with, with the added bonus of getting fitter . Hats off to you friend.

    Glad Leo is on the mend , Mrs Nigel getting stronger and you will all have a lovely xmas . Chat soon friend, have a good day .

    Much love Angela x

  • Hi Nigel,glad things are finally moving in the right direction and you are getting some relief. Its been a long slog since sept ! I assume it will be march before your next lot , so hoping you get a good break now. 

    Nigel, you are doing all the right things and making some changes that hopefully will make this rollercoaster of a journey a bit easier to cope with, with the added bonus of getting fitter . Hats off to you friend.

    Glad Leo is on the mend , Mrs Nigel getting stronger and you will all have a lovely xmas . Chat soon friend, have a good day .

    Much love Angela x

  • Hello again Nigel, nice to hear your treatment is going well and your health is good. Such a nuisance the trips to the toilet in the middle of the night. Better than the alternative though! Good news vis Mrs Nigel and the dog. Good luck with your fitness regime. Stay well. What’s a Gym?

    Garviv

  • Hi Nigel,It’s sounding positive and I wish you well.Best wishes to Mrs Nigel too and I’m glad the dog is getting better.Love Jane x

  • Cheers Angela, just finished work…ive eaten well today…

    how’s you ?

  • Hahah cheers Garviv, yeah I’m not a gym person, but I’m willing to give it a go…

  • Thank you Jane, I e not had a catch up with you, how’s everything? 

  • Stressed Nigel but the house sale/buying is moving forward Fingers crossed xx