Hi all my Nan has been diagnosed with Cholangiocarcinoma after ongoing investigations since November, very poorly managed at my hospital and have a PALs complaint in place due to this. Basically cannot have chemo as bloods show liver failure and...
My lovely mam was diagnosed with bile duct cancer in September. They tried several times to insert a stent but were unsuccessful due to blockage. They inserted a drain which helped initially but then the bag stayed empty so consultant removed it. Initially...
Hello, my Mum has been in hospital over the last several weeks investigating a mass in her liver and bile duct region which they now believe is cancer following scans and suspicious 'inconclusive' biopsy results from drained fluid (ascites). The...
My husband has been told that he is no longer suitable for chemotherapy. This in its self was devastating but now I don't know who to contact when he is unwell - we have district and palliative care in place. Who do I contact when he has pains in his...
So the mystry of what is happening to me started in May when I had my over 40 NHS health check. At this point I was feeling fine. However my bloods showed raished liver enzymes which indicate a blockage. Bloods repeated same issue. I was ref for an...
My dad's recently being diagnosed with Bile duct cancer which has spread to his liver and is terminal. He underwent surgery but surgeon says nothing else they can do. He's currently abroad as he was visiting his own poorly dad when he fell unwell. The...
My partner was diagnosed with HCC in the liver just over 3 years ago. He is under Kings who have been extremely good up until recently. He had all the chemo (injected direct to site), was then assessed for transplant which went ok but his blood platelet...
This has all happened very quickly for me. I went to my GP a few weeks ago with what I thought was gallstones. I had an ultrasound scan yesterday which revealed inflammation of the bile duct ( no stones visible). I've been unwell for a few days with...
Hello, My Dad was diagnosed with bile duct cancer over the Summer and has rapidly deteriorated since then. He is now at home and on end of life care. I'm feeling so lost at the moment. My Mum is with him and I've been going over most days to be there...
My husband has advanced localised metastatic cholangiocarcinoma and has been successful for the use of pemigatinib. We are waiting to have his eyes tested due to side effects but really concerned as 3 tumours 3,5cms, 2.5cms and 1.5cms( alongside the 2...
