New diagnosis

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My dad's recently being diagnosed with Bile duct cancer which has spread to his liver and is terminal. He underwent surgery but surgeon says nothing else they can do. He's currently abroad as he was visiting his own poorly dad when he fell unwell. The plan is to get him stable for him to travel back to the UK. 

I need to ring his GP tomorrow. What should I be asking for? 

Any advice appreciated

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read that your dad has recently been diagnosed with bile cancer. It must be an incredibly difficult time for you, especially with your dad currently being abroad.

    I don't know if you've spoken to your dad's GP yet but I guess the question I'd be asking is, how does your dad get his treatment transferred from where he is now to his local hospital.

    It would be great if you could pop something about your dad's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hello, sorry you didn't get a speedier response to your post. This is a fairly rare cancer, and there aren't many active posts in this group. I hope by now you've found out a lot more, and got to know something about the system.  Unfortunately it's not easy to navigate, and systems are different depending on where you live.

    My advice for you at this stage is to make sure your dad has all the community-based palliative care he can get - but also make sure the GP takes advice from a hospital-based specialist oncologist if at all possible. If possible, see an oncologist yourselves.

    My partner was diagnosed in October 2021, and we've been through lots of ups and downs since then. If you haven't found it already there is a good national charity, AMMF, and if you're on Facebook they have an active group there. And mostly, very best wishes to you on this journey.