My husband has been told that he is no longer suitable for chemotherapy. This in its self was devastating but now I don't know who to contact when he is unwell - we have district and palliative care in place. Who do I contact when he has pains in his stomach, or won't eat because everything tastes like gravel. Do I contact the Macmillan nurse he had when having chemo, do I contact the district nurse, what about his doctor (who it is almost impossible to get an appointment with these days) or should it be the hospice team.
I feel as though we have just been left up in the air which is really scary especially when he was told if you get a cold, flu or covid and come into hospital you won't go home again.
Sorry - today I feel really scared and not sure how to cope.
I’m so sorry for your loss. I have just logged in, so don’t know the full story of your husband’s treatment history. I hope you have support. I can’t imagine what you are going through. Take care an
take any offers of support that you need.
