Where Next?

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My husband has been told that he is no longer suitable for chemotherapy.  This in its self was devastating but now I don't know who to contact when he is unwell - we have district and palliative care in place.  Who do I contact when he has pains in his stomach, or won't eat because everything tastes like gravel.  Do I contact the Macmillan nurse he had when having chemo, do I contact the district nurse, what about his doctor (who it is almost impossible to get an appointment with these days) or should it be the hospice team.  

I feel as though we have just been left up in the air which is really scary especially when he was told if you get a cold, flu or covid and come into hospital you won't go home again.

Sorry - today I feel really scared and not sure how to cope.

  • i so feel for your pain and uncertainty. If I was you I would contact the nurse he had when having the chemotherapy. Departments such as these have clinical nurse specialists who are well equipped to deal with  your concerns. I’m so sorry you are going through this difficult situation but please contact the relevant department at your hospital. You are FULLY entitled to advice and support. 
    Thinking of you and sending positive thoughts. Xx

  • Unfortunately the doctors were right and he did go into hospital - he died there today at 12.15am.  I did contact the Macmillan nurse when I need help - she was brilliant - I wish I could say the same for the doctor from our practice who attended him at home after I practically had to beg for a home visit.  When the bloods were taken I got an emergency call from the hospital to say his blood showed kidney problems, white blood cell issues, anemia and possible sepsis.  He was taken in on Sunday at his own request.  

  • I’m so sorry for your loss. I have just logged in, so don’t know the full story of your husband’s treatment history. I hope you have support. I can’t imagine what you are going through. Take care anBroken hearttake any offers of support that you need.Broken heart