Hi all
my Nan has been diagnosed with Cholangiocarcinoma after ongoing investigations since November, very poorly managed at my hospital and have a PALs complaint in place due to this.
Basically cannot have chemo as bloods show liver failure and she is jaundice and horrendously lost weight and frail. She is unable to be stented due to the tumours and technicality of procedure is too tricky and therefore she is also not fit for chemo. So it’s palliative care and MacMillan nurses and going down the end of life route.
wondered if anyone has any experience or knowledge. Think we are looking at weeks rather than months as she is yellow and just worsening and how long realistically can she survive with a failing liver?
wish I knew how long we had.
any support welcome as very alone and despondent
l x
