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So started my treatment Tuesday, then yesterday the pump stopped, ( was supposed to be today). It had infused all fhe 5fu but in 73 hours not 96. Crazy! I feel fine and they seem to just be continuing treatment as planned but next time I’ll have a...
Haven’t started the chemo radiation but son is graduating college in June ( 13-16 is trip). Obviously I really want to attend this and have plans etc, any advice or thoughts? just diagnosed and still getting all scans etc, did tell the nurse navigator...
I am 6 weeks post radiotherapy treatment and had an MRI and CT scan yesterday. It’s been hard waiting for the scans, I just want to know if my tumour has shrunk enough for my operation. I am worried because my tumour is so low nearly by my anus that it...
5 weeks post treatment and I am very itchy at the back. Not all the time but on and off. I keep it clean but it drives me crazy! Will this go eventually? I am hoping it means things are healing rather than the other way around. Any advice on how to treat...
So the other day I mentioned the radiation cystitis and you all very kindly gave me some great advice. I’m also having issues with BMs , it doesn’t matter how much water I drink , I also take stool softeners but I’m finding that going to the loo, my stools...
Hello All, I was wondering if anyone else has experienced constipation for a long period of time. I'm now on my 11th day. I've been in bed for the whole week Post treatment with only short walks of 10 minutes outside. I've not had much to eat...
Hi, I’m so glad I’m 4 weeks in and still functioning at a reasonable level ( well until 3 in the afternoon!) im sore, but managing, and have started using hydrogel, which helps, but how often can I apply it? The radiographers seem to say twice a day...
Hi all, I haven’t posted for a while since finishing the treatment as I’ve been focusing on trying to get back to normal! I’m starting to get my appetite back and I’m not feeling so tired and I am trying to get out and about a little bit now the soreness...
Hi all, as promised my update. Sadly it wasn't a full response to treatment. My tumour and lymph where quite large and my oncologist said she didn't expect a full response at the first scan but of course I am bitterly disappointed. My lymph node has...
Well treatment finished last Wednesday after 5 and half weeks of daily radiotherapy and a portable pump with Mitomycin C and 5FU chemotherapy weeks 1 and 5 but I have continued working full time and got through it - how I did it I don’t know although...
