Chemo pump infusion rate

Hi i had my chemo via a pump they connected it on a Monday and then changed it on a Wednesday and removed on Friday, I found it was empty hours before it should have been but was told your body temperature kind of dictates how quickly it goes in. I felt a bit sick from the mitomycin from the start but had nothing else that really bothered me until about week 2/3. Pleased you are doing OK, tick those days off. Sending hugs. Xx

Thank you!  Sounds like you recovered and are fine with your hiccup! How far out are yiu from treatment? If you dont mind me asking

Ask anything you want. I finished treatment on 6th November 2024. Was told at 3 month scan that I had no active cancer although I did have some new uptake showing which means there is a tiny chance I have a new tumour but it's more likely it is healthy tissue that got damaged during treatment trying to heal itself. X

Hi Ewagirl,

I too am in the States and had the exact same treatment as you. My pump also finished ahead of schedule but only by a few hours, not 24 hours like you. I think a new pump is definitely in order! 

As for chemo side effects, I tolerated it pretty well the first week, but about 3 days after finishing with the pump, I got mouth sores, which weren't world-ending but not much fun either. I had to eat soft foods that were neither too warm nor too cold for about 5 days until the sores healed.

The oncologist warned me that the mouth sores could be worse after the second round of chemo, so I asked her for a prescription mouthwash straight off the bat, which I started the minute the pump finished the second time around. Guess what--no mouth sores! So, if you do get mouth sores, I recommend the prescription mouthwash. The first time I just rinsed with water laced with salt and baking soda and it wasn't quite as effective.

Good luck with everything, and I hope treatment goes smoothly here on out! Xx

Thank you so so much! I’ll get on the sores immediately and I’ll plan for the mouthwash so I can avoid it like you did!

hope you’re doing great!

Hello Ewagirl

I didn't have a pump, I had what they call a bolus, a large syringe of liquid given through cannula on the first day - I think the effect is exactly the same, it is just that different hospitals have different protocols.

I am so pleased that you are feeling well; that must be a big relief - long may it continue!

Irene xx