Hello. My mother was diagnosed with AML just over four weeks ago; it was then confirmed that she has TP53 - making it harder to treat. She hasn't started any treatment yet as she may be joining a study that is trialling a new drug. We are all worried...
Hi everyone. Please bear with me whilst I write this. I’m struggling for words. My mum is 65 and was poorly since July, she has Pneumonia and sepsis, repeat infections and was diagnosed with AML in august. We were told she has a strain that responds...
Hi my partner's just relapsed it really doesn't matter if you get bone marrow biopsy or not who knew.. anyway the more I read into it it looks like a second bone marrow is eventually most likely but just thought I'd see if there were any people who didn...
My 74 year old mum was diagnosed with AML last week and has been offered chemo (azacitidine and venetoclax) - which I understand would be continuous until it stopped working. Could anyone please share their experiences of a similar regime ? She is frightened...
Hi everyone, just looking for some support, or shared experiences reference my Mum's experience, we are now 15 weeks past diagnosis of AML (which was a complete shock) she was relatively fit and healthy for her age (80 years old) 3 rounds of chemo completed...
My husband was diagnosed with MDS last August after a bone marrow biopsy. He was put on a regime of Azacitidine - 7 days of injections then 21:days off. He completed 7 cycles of this then had another biopsy. Unfortunately his condition had worsened and...
Just wondering if anybody else had experience of having appendicitus whilst receiving treatment for Leukemia. Husband has had stomach pains for a while and they've finally given him a CT scan and literally just told him he has this- which they are going...
I've recently been told my AML is incurrable [partly age and partly already being a Disabled person] and about to start the recently approved tablet form of azacytidine. Is anyone in this forum already on it/have experience of it? I've just been sent...
At 77 I have had six rounds of chemo, azacitidine &venetoclax. each time my neutrophils have been low, so I then use daily Filgrastim daily injections.I think now might be the time to stop as I’ve no way of knowing what I might be gaining, just...
