I have been recently diagnosed with AML and have started chemotherapy with azacytidine and venetoclax. I am 69 and this came s a shock. I have had 4 days of treatment but I am still being sick every evening. The doctors have now given me another anti...
Hi guys, I am new to the forum. I am 21 years of age and I first got diagnosed in Oct 2021 and went through 4 intense rounds of chemo and got the all clear in May 2022. I recently found out I have relapsed and I am now needing a bone marrow transplant...
Was initially down for a potential stem cell transplant. However, did not quite reach remission with blasts down to 13% from 65%: a significant drop but not quite the desirable <5%. Consultant said my best option was Azacitidine and maybe in combo with...
Hi
Hello, I have had bone marrow disease for about one year, first MDS then 2 months later AML TP53 For 5 months I has standard chemo of monthly cycles 10 days Cytarabine and 28 days Venetoclax, after being in remission than relapsed. FLAG-IDA was then...
Hi. My husband has had polycythemia since 2015 and now diagnosed via a bone marrow biopsy 4% AML and the p53 gene. He has to have another bone marrow biopsie we are awaiting an appointment as just spoken to the consultant on weds with his results from...
I was diagnosed with Acute Promyelocytic Leukaemia (APL) in mid April 2022, having been advised to immediately go to A&E by my local pharmacist at about 9.30am about my badly swollen wrist. That morning my wrist, already doubled in size, had become crimson...
I just found out I have relapsed after 4 years (post SCT). I am struggling with major anxiety as I have a little boy (I was pregnant when I was diagnosed) and I was so hopeful I would get the chance to see him grow up. I guess I am looking for any positive...
Hello. Just looking to see if anyone experienced this or knows what it might be. My partner is currently in hospital undergoing treatment for acute promyelocytic leukemia (APML). His initial problems were mostly migraines and nausea but they seem to...
Hi everyone! It's 11 months since I posted anout Dad's AML diagnosis. What a ride. 4 Chemotherapy cycles, Sepsis, 20kg lost, Stem Cell Transplant, Heart Failure, COPD, dialysis and Stage 4 GVHD but here we are! It's been tough but it feels tougher...
