Hi all, I see a lot of the posts are fairly old on here but hopefully someone can help. My dad, who is 84, was diagnosed with AML last week. He has been offered non-intensive chemo (Azacitidine) which hopefully gets started soon. I’m trying to be positive...
I am starting treatment on Monday 8th September, for AML. Can anybody else give me any idea how successful Azacitidine chemotherapy can be? When you get a prognosis of weeks to months it is very scary. Any advice welcomed.
Hello all, My name is Mike, I am a brand new member, I am 80 years old and I was diagnosed on Thursday with AML. I just can't stop shaking and don't know what to expect, The consultant said she is meeting with her team and will formulate a plan, and...
I am currently at home after two rounds of intensive chemotherapy for Acute Myeloid Leukaemia (AML) with 5-6 weeks in hospital each time. I am about to be admitted again for a ‘consolidation’ round of HIDAC (high dosage of Cytarabine, twice daily on days...
Hi my brother In law has been diagnosed with AML last weekend, he is only 41, needless to say our world came crushing down. The doc said the chemotherapy is going well (he had to have a strong session for 5 days) he has also had a stroke in that time...
hi all, im new on here I,m now 59 years old and last june was diagnosed with aml ( flt 3 + npm1 mutation ) with 9-12 weeks to live. I intially started 2 cycles of chemotherapy ( Daunorubicin + Cytarabine ) + midostaurin which put me in remission....
Good morning. My wife, Karen is about to end her courses of Midostaurin having been in remission for almost 12 months. We were originally told that Karen would have 2 years of Midostaurin before being taken off it. The consultant had informed us that...
Hi, my wife has AML and been through chemo and transplant but mutations still present. Considering this treatment in Florida. But expensive and limited evidence of success. Interested if anybody knows anything about it.
My daughter just got discharged from hospital.. Hopefully last ever time as an inpatient.... Was in remission after round 2. Bone Marrow Biopsy again next month to make certain they've got it all - with some blood tests in between to ensure blood...
Hello. my wife was given the great news that she is now in remission 2 months ago and is now on a maintenance dose of 100mg of Midostaurin twice a day. Her latest bloods and consultant show that her bloods are in the normal parameters and she is due a...
