Hi all, I see a lot of the posts are fairly old on here but hopefully someone can help. My dad, who is 84, was diagnosed with AML last week. He has been offered non-intensive chemo (Azacitidine) which hopefully gets started soon. I’m trying to be positive but realistic. Firstly does anyone have a positive story to share from a similar situation? Secondly, thinking about the chemo, I have read up on the side effects but what can he do when he’s going through a cycle? Can he be out and about? Can he drive? I mean, if he’s not too sick and is fit to do so? Thanks very much!
Hi Grace1808 and welcome to this corner of the Community although I am always sorry to hear about your dad. I am Mike and I keep an eye on our various Blood Cancer groups.
I don’t have Acute Myeloid Leukaemia (AML) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell was then presenting so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
Let’s look for any group member to pick up on your post and get back to you.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
Hi Grace1808,
My dad was also diagnosed last week with AML. He is 86 and before feeling unwell about 5 or 6 weeks ago, was completely independent. He also has been offered non-intensive chemo (Azacitidine and Venetoclax). He has not made a decision yet about whether to take the treatment. We are due to have an appointment soon to discuss this. With the chemo, he has to be in hospital of 7 days, something he does not like the idea of. I have found it very difficult to find up to date information about prognosis/benefits of treatment/versus non treatment. I would be really interested to know whether you have been found/given information on this. Regarding chemo and keeping safe, there is some information on the Blood Cancer UK website. This is a really useful website. My dad was given a large booklet about AML from Blood Cancer UK. I wish I could give you a positive story but I am walking with you and hope that your dad responds well to the treatment, which I hope my dad will agree to. I have put below the linkj to the page on Blood Cancer UK which I think you will find useful. Regards
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