Any advice or help that I can offer my son son starting intensive chemo next week? 4 rounds. Any advice much appreciated ️
HI My son now(62) was diagnosed with AML DECEMBER 25. He spent the first 6 months (with the occasional home visit) in City hospital Nottingham. He was discharged July with weekly then monthly visits to the clinic. He is now back in hospital - his...
My Dad (78y) has CMML which has transformed into AML. He had a really good 9 months on Gilteritanib with few side effects and great control of his leukaemia. This stopped working fully a few months ago and he is now on a triple treatment which includes...
Hi my husband has just been diagnosed with AML after 17 years of myelofibrosis. He has also been told he has a P53 gene mutation. He's recovering from 5 days of intensive chemotherapy and had numerous infections. Is there anyone on here who has been...
Hi, I was diagnosed with AML in July and have had 2 rounds of intensive chemo and now I’m having my third round of chemo which is flag ida. After round 1 I was in remission and it all seemed to be going well, however my results for round 2 showed there...
Hi, hope the holiday period is as good as it can for you! I wanted to just update my situation and see if anyone is on the same journey. After a 3-month bone marrow biopsy early Dec, it was seen that there where abnormal cells, so after another biopsy...
Hi everyone, I was diagnosed with Acute myeloid leukemia in December 2024 and underwent 4 cycles of chemo, including 2 lots of HiDAC chemo. I had the FLT3 gene mutuation and unfortunately there was only a 9/10 donor match and due to having lots of complications...
Hello, I'm so glad I've found this community. I'm new here and this is my 1st post. I was diagnosed 3 weeks ago, following a really bad chest infection that wouldn't go away for 2 weeks, 2 weeks of extreme fatigue, I couldn't move, walk, I was on all...
Hi! Could I hear about people's experiences using Aza-Ven as a bridge to SCT. We have had our consultation to discuss treatment regimes for my mum's AML. The consultant said the mutations aren't good or bad, which classes it as intermediate AML. Both...
Hello, My father (86) was diagnosed with AML yesterday and I am absolutely devastated. He had MDS for over 2 years and the last 6 months he had injections every week which he responded well too. Then he had a couple of infections the last few weeks...
