Hello all, My name is Mike, I am a brand new member, I am 80 years old and I was diagnosed on Thursday with AML.
I just can't stop shaking and don't know what to expect, The consultant said she is meeting with her team and will formulate a plan, and get back to me. Does this mean I will get treatment,and if so, what are my chances? I'm not being at all critical, but I have been left wondering if I have a future or not. I do understand that it is so difficult for doctors having to give bad news, and just maybe I missed something she said. Both my wife and I were stunned.
I seem to be urinating every 20 minutes, and my nose permanently runs! Both uncomfortable, but not as being totally without any idea of where we go from here.
Any advice, or info. will be gratefully received.
Hi again MikeP25 and welcome across to this corner.
As I said in your post in the New to Community I was diagnosed way back in 1999 (at 44) with my first type of rare Non Hodgkin’s Lymphoma then in late 2013 I went to stage 4 when a second aggressive rare type of NHL appeared…… yes treatment was hard but here I am all these years later still living a great life.
The early days of diagnosis and treatment planning is challenging but it’s essential that your case is correctly reviewed to ensure the best plan is put in place…. and I am sure that you will find out the plan soon.
This group has been on the quiet side lately but let’s look for folks walking the same journey to pick up in your post.
When I was having my main treatments between late 2013 to late 2015 I talked with many folks in their mid to late 80s who were being treated for AML and did well.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups and the one I attend does have a few people with AML in it so worth checking.
