Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Hi again,
glad the thunder has run away and left you alone.
No there is no family about during the day as my sister is at work and all my friends are as well, so daytimes are a bit useless, however I am allowed to start driving next week again so that will be brilliant for me.
My sister is my only close living relative as both our parents died sometime ago (cancer and strokes in theoi cases but both had had pretty long lives). As she is my only sibling I do worry about her and how she will manage. I have left her financially pretty much ok through my will and she has her own provisions as well so that is no problem but she has no real financial impetus when it comes to sorting stuff out like mortgage rates and loans and savings and all that sort of thing. I used to do it for her so I know how much it takes to get her to do the right thing at the right time (she also very stubborn when pushed by others to get stuff sorted).
I have agreed with my friends that they will make sure she is looked after properly. one is a bank manager and one is a financial adviser so that should all be very good but I still worry.
Its difficult i think to envision being the only survivor for her, I expect she thought it would never happen that way and, anyway, when at our age you don't even expect it to be an issue do you? So i worry and just hope I have sorted things as best as I can for her. She doesn't want to talk about these things but is really for my peace of mind that I make sure we do.
Anyway, off to radiotherapy before long for another blast and a coffee before and after with one of my mates. We have worked out a rota for the week and that at least gives me someone to meet with and have a chat with during the day.
I know what you mean about keeping strange hours through these times but i want a bit of normality if I can so I am trying to keep to more respectable waking and sleeping patterns. I will give this way a try - lol then maybe become a night bird.
Hello Christine as well, saw you just jumo in there, good morning and how are you?
Cheers
Andrew
Hello ladies, glad to see you are both still here and such poeticism as well.
the sun is shining here again and am now back from the radiotherapy. My main complaint with that process is the indignity with which I manage to get off the bed thing afterwards, reminds me of an arthritic giraffe somehow, slow and ungainly. lol.
Diannesylvia,
I was going to say exactly the same as christine re your daughter and her dad. My sister butted heads continuously with our father and then again could twist him around her little finger with ease whilst throwing him a line. It was a knack I washed I had had at times with him as my relationship was very fraught throughout our lives. Then when he was dying she was the one who seemed to feel it least and me most - strange how these things work out, I still have regrets over a decade later and she has moved completely on.
2/5ths of the treatment now done, three more days this week then, hopefully, the week after I can start the cancer treatment again!!
the pain has moved slightly today to my back again but in the afternoon instead of the morning. I can manage that and it is less than before so I hope that this is working as it supposed to i.e. get rid of the spread onto my spine and ease pain as a side effect. At least I can stand up and walk more comfortably and did the stairs in the hospital instead of some of the lifts, a bit of exercise for my body at last.
My friend who taxied me to hosp and back today is due to collect the new car we are arranging on Friday so I have paid some of the deposit for him and I will be able to get into that car at least!! I like helping where I can, it makes me feel good to spend money on someone else and at the same time I do get something from it as well.
Tomorrow the GP is calling round in the morning to prod my stomach a bit and see what he thinks about the constipation. I called the surgery for the nurse but they said GP would come round instead and see what he feels so who am I to argue with the better service! he can then decide whether or not I need just some stronger shifting materials or some form of enema or suchlike. The Mac nurse is also due for an update in the morning so I had better make sure I get up in time for all this!
Who said you don't get your monies worth from the NHS, I seem to be. When I weighed myself this morning I seemed to have lost about 6lbs this week and I know I need to be going the other way and put weight on. I am due to see a nutritionist from Mac soon to review my diet but I am hungry just can't find space at the moment for the food I want. I also want to get back to some form of exercise planning as my muscles are disappearing rapidly on my back and thighs. I know I need strength going forward to fight this disease properly and I want to do the right things to give myself the best chance with the drugs I have been lucky enough to get.
Next week I see my planning all coming together into some fruition and then I can start re-building my life to some semblance of normality. Here's hoping.
Have a good day everyone from me.
Cheers
Andrew
Andrew,
Glad to her from you that number 2 session went OK and you seem to be on good form today.
I do admire your attitude and determination, and I will try really hard to follow suit.
Had my bath, but instead of making me feel fresh and raring to go, it had the opposit affect, made me exausted, weepy and in that black hole. Then to make things worse every song on the radio seems to be a weepy as well. My darling husband just got in from work, saw I was down, and made the fatal error of asking if I was OK. This just set me off again and he took the brunt of my frustration.
So here I am, passing on my pissy mood, sorry everyone. I think I'll go and join him in the garden to watch the sunset.
Luv.
Christine.
Christine,
enjoy the sunset, they are beautiful creations just designed to lift your mood and for tonight only its just for you and no-one else!
Yes the radiotherapy went well and the pain from the cancer is lessening with each one - hoorah - something is working for me!. However, all of life is a balance and what the great god pain takes with one hand he delivers back again with another. Almost immediately after the joy of earlier I had a sudden burning pain went I went to the loo, horrid smelling stuff came out and I have a kidney/bladder infection instead - gosh life is funny sometimes isn't it.
Anyway have spoken with NHS 24/7 and as long as I drink plenty and it gets no worse they are happy that I wait for the Doc to come tomorrow and sort this out then. I am happy with that as I can sit myself in one position and let it get on with things. Now its shown itself I am ok with it, at least I know what is causing all these things I have had for the last few days and a decent set of anti-biotics will clear it up fast enough.
I have done my round of telephone calls with friends and had some nice chats about nothing in particluar but did get a couple of invites out in the near future to view a couple of houses and some shopping/lunch - I want a designer pill bag - lol.
Am looking forward to sleep again tonight as quite tired now and I have enough varying pain killers to knock out the preverbial horse. Some ice cream for pudding and bottled water will see me through.
I am really sorry no uplifting music came on the radio for you and will put complaints into place immediately so it never happens again. Tell your husband its all my fault and will be rectified in due course - i have friends in low places you know!!!!
I hope that the evening has got much better for you and please enjoy it anyway.
Always have fun if you can and if you can't - have fun anyway. Misery can be a laugh too especially with company, I have told my mates, sometimes I just want to be miserable but I want to do it with you so sit down, have a moan, lets hate everything for a while. It can work you know, just look onm the black side of life for a while it soon gets boring over there and you leave for the bright side of the street.
Have a good one please, for me
Cheers
Andrew
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