Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


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Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember
    Hi Andrew,

    I read your post and thought i can share my experience with friends even though its my dad who has cancer. What ive learnt over the past few weeks is that(and this is harsh) life goes on. Everyone will be upset for you, not know what to say, feel uncomfortable then carry on with their lives. I try and tell myself its me its happening to, not them so how could i expect them to understand? its difficult as i feel i dont want to burden my frinds with feelings they dont understand, its no fun being around someone who is down all the time, despite having a bloody good reason to!You get the'Your being so strong' but inside i feel like screaming. I have a very good friend who i live with that sees me go through all emotions and is a great support for me. My boyfriend is also an amazing strenght but then i have thoughts like if a keep being sad and down will he get fed up and leave me?( i know he wont but i think it!) Since i have been coming on here it really helps me, there are people here who understand and can give great advice and a second opinion. If your friends are friends they will be there through thick and thin, some might find it so hard to deal with its difficult for them to be around you. Your not selfish for feeling the way that you do. I hope things get better for you x
  • FormerMember
    FormerMember

    Hi sarahnicole,

    no you are not being harsh at all, I probably know the answers anyway but not enough to form them into anything useful to me at this time. I am sure you are right in what you say and they will all be there whenever I need them but the "am I a user" question always crops up somehow.

    I just read your post about your dad and smoking so please don't hate me but the first thing I did when I got the news was get a cigarette out and smoke it in the hospital car park!! and I thought to myself then "just how stupid was that?". I do try to stop each day though and it is getting easier to cut down so I am sure your Dad really feels silly inside when he lights up but I don't think at all that he is saying "right, thats it, my life is over may as well smoke now", I think its just an automatic response and a crutch that can be used immediately.

    Thanks for your thoughts and best wishes to both you and your Dad.

    Andrew

  • Andrew, I found your post just after I found Analogues, and want to say similar to you, our daughter has had cancer now for almost 4 years and as yet is not in remission....she had very close friends( she thought!) who just faded away, also having been overheard to say (she was in a quartet with them) 'its a good thing she is so ill, as she's been able to do all the admin. work needed' I hated them the moment I had heard about this for their total lack of consideration and feelings. She has a big circle of friends who have stuck with her through her tough times and are still there for her now.....as she says about her former friends, even though it hurt her a lot at the time,' it's their problem, not mine'....Andrew, I just want to wish you well and send you love on your journey....

    Moomy

  • FormerMember
    FormerMember

    Moomy,

    thanks very much - I suppose I have a journey of my own to on here and things will change as they are wont to do without me being able to do anything about it at all.

    I do trust my friends implicitly but there is always that nagging set of doubts to conquer on top of the cancer. I know that with renal cancer I will never have remission or cure and that it is just a matter of how much time left and what I do with it and I think that this was the area preying on my mind. My only remaining family is my sister and she has a life of her own to live and has never really been part of this group of mine but she is trying very hard to fit in with them now and doing well in that endevour, bless her!

    How do you keep people "with you" when most of the future news is not going to be all that positive? Everyone always wants a step forward and mostly I have been unable to provide that, more like two steps back. Now I am starting to sound like some form of depressive and don't mean to but it just happens!!

    Anyway, many thanks for your post, I am really really happy that your daughter has manager through this and you seem to be as well, it means a great deal to me that people I do not know at all are prepared to read my thoughts and respond to them, it restores my faith in people every time I see and read it here.

    Thanks very much again and have a good Sunday,

    Andrew

  • FormerMember
    FormerMember
    H i just a very brief comment as I should be getting ready to go out.

    We too have found friends and family members have evaporated into thin air once the word cancer entered our lives. My husbands family have always classed themselves as close and supportive, funny that when since Augaust of last year not one of his 14 cousins, 4 nieces and nephews have found a moment to pick up the phone to just say 'Hi' also friends for whom he has taken so much time to help them in building extensions etc, working on cars, whatever, many have forgotten him now in his time of need.

    I think so many people are still scared of cancer (but then so are we), don't know how to respond, OK (I can live with that one, I gaff as well), and feel uncomfortable around the enormity of the concept (yeah you and me too buddy). Perhaps people also worry that 'uncomfortable' topics will be aired (not easy discussions even when dealing in abstract), and frightened of facing this reality ( again - you and me too buddy).

    Also we English do have an innate fear of raw emotions and mostly back off when there are signs that this is imminent.

    Don't know for sure but that is my opinion.
  • Andrew, that is one of the huge 'plusses' on this site, those who you don't know but just meet on your journey, through posting on here, do stick with you or at least help you on your way....just keep posting!

    Moomy

  • FormerMember
    FormerMember
    Thanks juls,

    it does seem strange sometimes that we have the disease and are also expected to shoulder the burdens that go with it, it seems easier for me to not talk to people about the disease or even sometimes not to use the word "cancer" itself at all and pretend for them that its all OK when its not. I hope that as previous posters have said, this works itslef out and then you get to a place you need and want to be with people who do care.

    Thanks

    Andrew
  • FormerMember
    FormerMember

    Moomy,

    I will keep posting, it has helped alot even so far, it is a pleasure to me the feel that people out there in cyberspace have time for me (and for all the others on here) when you need it. It helps.

    Andrew

  • FormerMember
    FormerMember
    A reply to my own reply,

    is that egotism or what, anyway there is a purpose to it and it was only to say that thus site works in so many ways, I have recieved messages of support from strangers andf they have lifetd my spirits for the day at least and I have seen a thread about a drug I am on which others have started using which can only help me gain knowledge and insight into other peoples positions and circumstances which would otherwise have been totally lost to me.

    I am sure that everyone here has had the same sort of wonderful outcome from simply reading and posting but this has done it for me in the best possible way for today.

    Thanks everyone from my heart.

    Andrew
  • Andrew, a first ever post is not only tough to do, but sitting waiting for response is tough, too (been there, done that!) so if you've found a thread that means something for you, I'm sure you'll be welcomed onto it! love.....

    Moomy