Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Diannesylvia,
I don't think you're mad at all please feel free to interrupt at any time you want to and I can't belive anyone would be so casually cruel ads to prtend they haven't seen you, I have only just made your acquaintence and am sure I would no such thing and a hex on anyone who would!! Talk to me anytime you want.
Moomy and Christine,
thanks I think you are both on the same lines here and that sounds like a very good idea to me. I have annual travel which they tell me will cover for everything except the cancer/medical to do with the cancer so that gives me food for thought and a plan for the future. I am grateful to both of you fort this.
Daft ladies and Andrew - could be winning thread but please always feel free to burst upon this thread anytime you have the notion to do so and I will return the favour!! A good laugh can beat most things I have found that out today in no uncertain terms and bless all of you for that.
I have sent the thread and the site to my friends today with the express intent that they start to use it, they all have things they are unsure of and I have impressed upon them the help they will get here which will be unbiased, from experience and given with grace and humour.
Four more shots of the radiotherapy to go and all my fingers are crossed, if ot does not go the right way then am even more convinced that the Doc and I shall have to work harder at morphine balancing to get the mixture right for me and for life. The Doc is convinced she can do it anyway and that I can start and set realistic goals for getting back to work.
I see that as my next major ambition as it will be a victory for me against the cancer, I don't need to work (thank goodness) but want to. for the automatic goal of having something to do in the week and for being closer to "normal" again. Also it makes holidays more special - lol
Christine,
I Iiked the ideas of short city breaks as you have done, it sounds like and ideal mix, not too short and not too long but still different scenery and loads of great places not too far away too visit and enjoy, another good idea for my dfriends and me. Thanks,
Well, just finished a bowl of healthy Ben & Jerry's ice cream so must be almost time to try for sleep, although may watch the end of the Masters Golf now as its almost over. Goodnight all and thanks, speak to you all soon.
Andrew
Good morning all,
I have had a strange night, I think it was called sleep that happened to me. That was the first night for about 5 or 6 days when I can safely say I approached a decent amount of sleep. I went to bed rather tired at about 1am and then only one middle of the night wake up at about 5am ish then a quick swig of Oralmorph before getting up for real at 7.30am. For me that is a welcome return to some sort of sleeping form.
Does everyone have these issues? I was warned that the amount of analgeasics I am taking can interrupt sleep levels and that also trepidation about the radiotherapy will also contribute to this lack of a good night but was not really prepared for the effects it would have on me and my personality. Having had some sleep last night though the difference is remarkable.
The morning pain has shifted slightly in its intensity so that I have been capable of standning long enough this morning in the kitchen to make a cup of coffee before the need to sit down again overtakes me, and that was good!!
I also have another, rather more sticky, problem that I would appreciate some short pithy answers to; constipation has struck. Over a week now without a reasonable movement and I am getting rather uncomfortable with it. Bloating and vast amounts of painful wind but no real results have been the upshot of Movicol/Senna and mixtures of the two, (even Gripe Water has been suggested and tried to no real avail). One of my friends has suggested colonic irrigaion as a possible answer but I am not sure about this as your gut length is used for the intake of drugs and I don't want to upset that process at all, as well as the fact that there is all that good bacteria and stuff in there which probably does not need to be washed out of me.
Hello all, a couple of quick fixes anyone?
Many thanks and a good morning to you all in sunny MaC Land.
Andrew
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