Germinoma diagnosis. March 2017

Hi Kieran02,I’m so so sorry that you are struggling,you have been through so much.It is good that you have written here and I hope you will find the boards helpful.Do you have much support from family,friends or a doctor ? It is so hard at the moment with the pandemic affecting all aspects of life.Talking to someone will help.I’m struggling lately too.Love Jane

Hi Jane. Thank you for messaging me. My family have been so good but sometimes I feel I can’t speak to them. My friends and I kept in contact through my treatment and after but after a while it stopped. My two best friends are in full time jobs now and I sometimes think I don’t want to bug them. They’ll have a lot on. I spoke to my parents individually at the beginning and my brother too. It’s like everything has went back to how it was before I was ill. I feel like nobody thinks about what happened apart from me. 

Hi,I joined the life after cancer board and found it helpful.The Macmillan helplines are supposed to be good too.Do you still have problems with anorexia ? I think people assume once you have gone through cancer treatment and are clear that you fine.I know exactly what you mean,I have experienced it myself.Going through cancer is a life changing event.You probably need some help to process what you have been through.Love Jane

Hi. I think I’ll have a look at the Macmillan helplines. Thank you. No sorry. One of the brain tumours affect my pituitary gland which made me not able to eat. It definitely is life changing. I am on medication the rest of my life and my eyesight was affected by 2nd tumour and will never go back to normal. How have you been affected

I’m sorry to hear your eyesight has been affected.When I was diagnosed with bladder cancer I joined the Macmillan boards.It’s been a lifeline and has got me through times when I felt depressed.I struggled more mentally than I thought I would.I think this was because I had no support from the gp’s or my specialist nurse.It did feel a lonely experience at times.My sister has been a great support.My partner has been brilliant too but due to the pandemic he is having to shield.This has been really hard because we cannot see each other.We are in touch every day but I miss not seeing him in person.He suffers from a rare muscle disease.I was caring full time for my mum but she is now in a nursing home.I have a stoma instead of a bladder but have adjusted well to that.My body looks different but thanks to the skill of my surgeon I’m alive and so grateful.Take care love Jane