Feeling Lonely - Where do you turn and who can you talk to when you are now 'well'?

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Not sure why I am so sad and feel so alone but I find that now I have had the all clear and an slowly getting back to doing more things after surgery, despite still being in a lot of pain some days, people have left.

I wasnt inundated with messages when I was diagnosed or during my surgery and immediate recovery but people did check in. Now I seem to have been forgotten.

My family just tell me well you are cured now and when I am down I just get told not to be sad.  I have nothing to be sad about. 

But I live with the scars and the pain every day still wondering why it happened to me and what I did wrong to deserve it. 

I know people have it so much worse than me and survivors guilt is real when you know others have not been so successful in their fight. Which I guess is why it feels so lonely. 

Where do you turn and who can you talk to when you are now 'well'?

Sorry for such a negative post but I don't really know where to release my feelings.  

Thank you for listening x

  • Hi  i was diagnosed with cancer a little over  three years ago and Macmillan offered talking therapies which can accessed via your nurse specialist or GP.   I think there is also another online forum called life after cancer.  Best wishes for your continuing recovery.  

  • Hi  .

    You could call the Macmillan Support Line open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides practical information, emotional support or just a listening ear.

    Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • I found the Macmillan online HOPE programme very helpful and it helped me to move forward with recovery. I like that I can dip in and out at my own pace. If you are anywhere near a Maggie's centre there are lots of things going on there. The helpline can also let you know what support is available near you. Your GP surgery would also have some contacts about local services. I really hope you can find support that's a good 'fit' for you. Sending best wishes. 

  • You can call Macmillan hotline to talk about your feelings. I found lots of support there. There may also be some local groups like Maggie's. And like M8ck suggested you can also try Talking Therapies. Sending you a gentle hug 

  • Hello. I know just how you feel. I finished chemo last November and scan was ned. I am very grateful but feel a bit lost. Had follow up scan yesterday so nervous. It never really goes away but people around me don't want to know and I feel like a very uninteresting person and Ive nothing else to really talk about - the last 18 months have been all about the cancer. We can't just bounce back to how we were but I know you are trying just like we all do. We need to be kinder to ourselves too.  Thinking of you and thanks for prompting me to release these feelings too x

  • I just want to say: no wonder you feel like that!!! It's really hard that the people around you aren't able to understand the really devastating aftermath of cancer - even when successfully treated (and this doesn't allow for the way we have to wait - and wait! - to find out if that success will stick!)   I've been treated for oral cancer and been clear for 18months. I relate to a lot of what you're saying and am really struggling with my mood. I heard a really helpful podcast today - if you're still on the forum, you might find it useful. I found it very validating: 

    https://www.cancercandoonepodcast.co.uk/e/cancer-treatment-ends-now-this-is-the-hard-bit-two-women-talk-through-their-breast-cancer-reality/

    I hope you start to feel better. And I hope you can find people who are a bit more empathic about your situation (I recognise that often people do the withdrawal and cheer up thing because they've been scared and now want not to think about it - but I still think that's really hard for the cancer survivor themselves, who doesn't have the luxury of not thinking about it!). Take care xxx

  • I also know how you feel. Cancer also dominates my conversation. I'm trying to find something else to talk about but it's not easy. Maggie's is great for that because you can talk as much as you like about cancer and that is that the topic of the day every day. If you can't get to Maggie's you can go online and join Penny Brohn UK for some classes and workshops and talk about cancer. Let's face it cancer is the most important topic for us xx