Waiting again

Hello elephant222, I am also going through this, my husband has spent more time in hospital than our since May, he is on again now, sepsis temperatures etc. Its hard enough knowing he is coming to the if his life at 61 but not being allowed to be with him when he might not get home is so painful and what makes me really angry is that people can go to the pub and on holiday but we can't be with our oved ones. It makes no sense at all and I just cry all the time. I hope you get him home soon. 

Christine xxx

Hi elephant222, I feel for you. Last week my husband was taken in and, of course, I couldn't go with him because of covid. He, like yours, has damage to internal organs from radiotherapy. It is horrible when they're suffering so much. Mine went to bed early with codeine again, but at least he's home, for now. I don't know about you, but I can't sleep when he's in hospital, mostly because I can't be there to comfort him. Having a partner with incurable cancer is to have a constant emotional burden yet with such pleasure at seeing them when they come home. I hope you get that call soon.

Love and hugs,

Thank you both for your replies. It's been a difficult few days with my husband still in hospital. His phone has gone missing so we are unable to easily contact each other. I've ordered a cheap pay as you go phone which I hope to be able to get to him tomorrow. He has an abscess on the prosate and spinal compression now so it's not looking good. I know his time is limited I just want him home with me.

The heartache is unbelievable isn't it. Kev has pneumonia now as well, he knows he hasn't got very long abd just wants to come home to die. The palliative nurses have been drawing up his last wishes for his end of life, but what's the point of that if he can't come home and I can't go in to be with him. They keep upping his morphine and he is on 4 different antibiotics for the sepsis and pneumonia. Makes me want to scream, they can't have what they want at the hardest point if their life. As for the phone, what a pain, when hubby went in he had a bagful of tablets including morphine and they lost it for two days.

Hope your hubby gets home sweetie, hugs xxxx

Thank you so much for your kind words. I knew it would be a difficult time but as you say the heart ache is unbelievable. After being at every appointment and involved in all his treatment for 5 years I feel like I was just cut off when he was taken to hospital.  It was so difficult to get any information from hospital staff. He is home now with an enormous bag of meds I'm trying to get my head round. He has a leaky catheter, a bit confused and unsable on feet. I'm so worried about him falling and being taken away again. He's in bed at moment so at least I know he's safe if a bit damp! It's nothing that I can't cope with though if it means we can stay together.

I really hope you will be able to see your hubby soon. Stay strong x