I could scream into a pillow today.
My 78 yo mom is waiting for a confirmed diagnosis, it’s been that way for three weeks now. In the meantime she’s SO unwell I don’t know what to do, she’s lost so much weight, she can’t keep water or food in, she’s got bed sores, she’s got breathing difficulties and no-one seems to be doing anything. My 74 year old aunt is trying to support but it’s taking its toll.
I’ve spoken to community nurses, they helped once, haven’t seen them since. I spoke to the GP, he gave some anti sickness tablets & did a referral for someone to come in and assess my mom’s OT needs, they came in, we got some walkers delivered today but one is not right so won’t help.
I emailed the Consultant but got an OOO. I spoke to the Gynae nurses to get the fluid from her stomach drained and to assess the latest symptoms as I said how bad it is, they said they’d get back to us, they haven’t.
I’m trying everything I can but it’s just not delivering any reprieve and movement.
The system is broken and it’s cruel. Watching my mom suffer like this is devastating. This isn’t dignified and I have no idea what else to do.
To make it worse I’ve got a huge phobia of sickness so my mom being sick is making me so on edge, I don’t think my nervous system can take much more.
We’re heading into an Easter weekend so skeleton staff and then industrial action. Let’s hope and pray that tomorrow there is some movement.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007