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Friday February 24th
Well it's Friday, but only just. It seems to have been a long few days since I had the T session on Tuesday. Side effects are just starting to kick in with tiredness, thick throat and tongue and my nails are hurting a bit too, I have a few muscle/ bone aches and pains, it's bearable so far though. It's the lack of sleep and hot flushes that are making things more difficult.
It's a busy day tomorrow, Fridays always are, I'll have to see how I get on. ...
26 August 2016, we received the gut-wrenching news that haematology consultants at University Hospital of Wales, Cardiff believed Ryan had a very rare form of Lymphoma, known only to Asian and Latin American populations of men over the age of 50.
There were still further tests needed as a few experts were baffled to see this cancer in a 14 year old Western European Caucasian boy. We were given the confirmation diagnosis of EBV positive NK/T-cell non-Hodgkin Lymphoma on 2 September 2016. Steroid...
Medussa made herself known to me on Christmas Eve. Yes Medussa was the breast cancer lump which may have been growing within me for years.!How did she manage to do that without me knowing? My last mammogram was in Ireland in 2014.Moving to Wiltshire in 2016 I missed two mammograms as the Consultant says,patient "did not attend as life was too busy".I am still disappointed with myself for not putting myself first.Thats what we do us Women-Right?
So there I am at last sitting down on Christmas...
I went to the emergency room in Philadelphia and was told I had prostate infection the placed me on antibiotics for thirty days No progress I went back they said we have isolated and are changing the antibiotics no progress I went back and they said see a specialist I did the urologist probed and stated yes prostate infection thirty more days different antibiotics. No progress went back he performed same probe and stated how did I miss this the first time you have tumors on your bladder wall don...
Wednesday 22ne February 2017
I've been awake since 3am and didn't get to sleep till 12.30 am, and have been to the loo twice in that time, so not a great night so far,so thought I'd catch up with the blog.
Yesterday I went for my fifth chemotherapy session. I really didn't want to go, the chemo sessions are fine, the ladies there are wonderful, it's just the after effects which are horrible, which kick in a few days after. I got up and made some scones to take in for the ladies...
Well I think this is gonna be a long blog, but sometimes it is easier to write than talk. Talking is hard it brings tears and emotions that I can not deal with. I am 65 now and have dealt with more crap than most but this latest roller coaster ride has got to be the worst ever.
My partner Sharon is only 53, a right tough South London bird with the biggest heart you could wish for. Family, is Sharon's main concern, Good or bad Sharon will be there, give them stick, give them love give them hugs, end...
I’m finally in a positon, I’m able to sit down for more than 30 seconds before my backside starts to hurt, to write a few lines on my experiences in hospital. As I have mentioned elsewhere I have had a pan proctocolectomy removing my whole large bowel, anus and rectum. I have had what used to be my bum sewn up (hence the issues with sitting down) and I now have a stoma.
Pretty major stuff but I have to tell you I have not felt so good for many, many months.
I can now eat a meal, small...
Sunday 19th February.
Well I'm well and truly fed up with a capital F tonight. It's been a few days of feeling ok, I've been out for lovely walks, met up with friends but then absolute sadness. Nobody would know though by looking at me.
I'm putting this down in words because I need to read it back hopefully one day to know things are better. It won't make nice reading, but I need to get it out.
I feel lonely, that's the worst of it. I can't talk to anyone because if...
during this time. This has been used by my local MP who has taken it forward to the health department to hopefully obtain a substantive response as to why the drug has been removed from the NICE list?
My story started when I was diagnosed with a Neuroendocrine Tumor to the pancreas.
I was at my Doctors surgery and I noticed that they were providing well man checks for the over 40s Male. I decided to take these basic checks. After a couple of weeks, the initial blood test that I had given came back...
So.....it's been over a week since mum died and my last post was titled final chapter but I still want to write. Maybe it will help, it might not but anythings worth a go. And is also fuelled by a wee Beveridge but here goes.
Mum had a rare form of brain tumour which no one has been known to survive .........ever.
Yet even when mum was ill in intensive care and the doctors were having conversations with us about withdrawing medication etc I still never gave up hope. Through all the dark days...
