Blogs

Latest blog updates

• To Hop-on or Hop-off is the question?

  Mr U 6 hours ago
• Living with Desdemona

  Desdemona 21 hours ago
• Today my coffee tastes like Christmas in Costa Rica

  Beesuit 1 day ago
• One Step At A Time

  Phild26 1 day ago
• Community News

  This is a place where you can read about everything that's happening on Macmillan's Community. From guest stories, to sharing awareness months, here is where you'll hear about all of the latest from Macmillan's Community.

  Dylan - Online Community Team 3 days ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  W J 4 days ago
• Multiple Myeloma

  Tess123 13 days ago
• Mumofcancer

  Mumofcancer 20 days ago
• Cycle 19 and not working anymore

  Emotions 22 days ago
• Warm your teaspoon

  Mrs of husband with bowel cancer - T3 N1 - chemo to be followed by radio then anterior bowel - depending what they find. Oxaliplatin and Capecitabine being the prescribed drugs. `

  Sierraoscar 23 days ago

Latest blog posts

• Dignity Pants and other misnomers

  Ding, Ding, Round Four

  Ding, Ding, Round Four I started three months of Chemotherapy on Monday 18th September 2023. It is now Thursday 7th December. And the last day of scheduled poison pills and the start of a proper detox. Well, truth be known I am actually now over 24 ...

  Dignahtee over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Dose 2

  21 Dec 2023 starting my second dose tonight, delayed a couple of days as my anti biotic course hadn’t finished. 

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Dec 2023

  Dec 2023 first dose is ok so far. But I’ve had a cold so was worried about infection, went to GP for blood s and they came back fine ( infection and platelets etc). Had antibiotics and just about out of my Cold. So bloods next in a week and the...

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Change of chemo

  5 tablets of 40mg dose and then 6 week repeat. I’ll probably feel it 3 weeks in. I’ll let you know. It’s three weeks (when it’s meant to kick in)and no change in my self (usual tiredness and slight headache) bloods next in thr...

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  New chemo

  Slight growth based on drs meetings from my last MRI. So changing to just CCNU treatment. 1 tab every six weeks Hope someone finds this helpful 7th Nov 2023 Started my Lomustine last night with one antisickness. Woke up feeling no...

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Oct 2023

  It’s now Oct 2023 I’ve had my third MRI now and the halo of the tumour has grown but very slightly. I’ll have my blood test for the next chemo (temozolomide) 280mg a day for five days

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Diagnosis

  it was diagnosed as a grade 3 strocytoma cdkn2a/2b

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  Operation Jan 2023

  So due to strikes and having a kidney stone 5mm and rushed surgery early december. I had my tumour out in jan 2023. Unfortunately only 60% was removed and it was diagnosed as a grade 3 strocytoma cdkn2a/2b. I have had radio therapy and am now on chem...

  W J over 2 years ago
• WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  The diagnosis

  W J Hi I’ve put this in the welcome page but though I’d put it copied in here and my progress. I have a grade 3 astrocytoma cdkn2a/2b. I discovered or should I say symptoms began last year during covid.jan 2022. I woke up ( having o...

  W J over 2 years ago
• The tonsils have to go!

  One week post operation

  So, last time you heard from me it was the night before surgery! It’s now a week after surgery and two days since being discharged from hospital. Although I’m totally exhausted, things are going as well as can be expected. I’ve had...

  Coxey over 2 years ago