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  • quilljar's blog
    leg pain at night
    I am new to this blogging stuff, having just found this site. I have had CLL diagnosed for about three years now, and this week suddenly started terrible severe pains down my left leg and groin. The hospital registrar checked for deep vein thrombosis but said it was not that; but could be my lymph gland playing up from the CLL. I am taking Tramaset for the night pain which has worked well. Has anyone else any experience of this type of night pain? Does it go away?
    Former Member
  • boatbum's blog
    Not a good day!
    Well, it was nine weeks yesterday since surgery, and I was having a good day, busy tidying up for visitors this weekend. I have tickets for Madness, Aswad on Saturday night and we're all off to see that. We have a four month old puppy, which we collected a week after I came out of hospital, and she's a bit manic. Two speeds, asleep and 100 miles an hour. She lives in our kitchen, behind a child gate,and I managed to trip over it yesterday afternoon and really hurt my ankle. don't think it's broken...
    Former Member
  • megz's blog
    my first blog
    wow, didnt think i would be blogging again and definitely didnt expect to be doing so on this topic. well as this is 'my first blog' i think i should tell whoever reads this a bit about me and the journey i have been on so far. well i am a 20 year old student at plymouth university studying human biosciences and have had a full and amazing life so far (even going through this doesnt stop me from thinking how amazing life is)from living abroad in dubai to taking a gap year and becoming...
    Former Member
  • pupskin's blog
    Bl**dy H*ll
    Not again. Cried for about 2 hours when heard my Mum had to have further treatment (removal of 5 lymph nodes - poss chemo). Just seems like worst thing possibly because her mum (my gran) also hospitalised currently (due to be checked out) with fluid round the heart. Just...too much. I prayed tonight. Just the waiting and the NOT knowing is worse. At heart though I knew this ghost wouldn't be laid to rest after a year - perhaps never will...
    Former Member
  • ClaireWEY's blog
    Day 1 - The Waiting Game
    Hi, This is my first blog as I only joined the site today. I will start with a bit of history. Last June my husband was diagnosed with Bladder Cancer. Fortunately one dose of chemo and surgery appeared to sort the problem and his checks have been clear since Feb. His next one is due in August so we have our fingers crossed! In April of this year my Mum was diagnosed with Small Cell Lung Cancer and is currently undergoing chem but has had numerous complications. In Feb, I went to my gp with abdominal...
    Former Member
  • boatbum's blog
    Day 63 since surgery!
    I've been reading through some of the forums, groups on here, trying to get some sort of handle on what's happening in our world. Some heart warming stuff! Hasn't made me decide yet whether to go for the chemo or not. I don't feel at this time that it's a roller coaster ride emotionally, while coming to terms with the changes to come in my lifestyle...... Advice about chemo or not,comments generally or personal experence would be very welcome.
    Former Member
  • Jillyanna's blog
    I had a big one!!
    Just to let you know if anyone is curious, but plucked up the courage to ask about my kidney cancer, I had a frank talk with the oncologist, I'm for paliative care only. My tumour was 8.3 cm and had already spread through the vein and to the lymphs. Been taken off the chemo, as the side effects where killing me before the cancer, but hope to go back onto more after the result of my scan which is coming up soon. But on the good side, so far i'm feeling ok, and would not think that i was a grade 4...
    Former Member
  • boatbum's blog
    Boatbum' Blog
    Where am I going, what am I doing? After recent surgery, and assurances that they have removed tumour, diverticulitis and perforation, they want to do chemo as a belt and braces. My partner, a naturopthic nutritionist, is agin it, my son was all for it, but after a conversation with him yesterday, he will support my decision whatever that is. From my research s far, I am leaning to the opinion that chemo is a waste of time, and way, way too invasive. I may still be in denial, but I did at least...
    Former Member
  • Jen L's blog
    Sweet & Sour
    Hi All, Wondering if anyone can offer any tips of foods to eat whilst going through radiotherapy? My mum is halfway through her 2 week treatment for cancer of the gullet and is finding now that certain foods she used to like have completley different tastes, as do drinks. She is off tea and craves milk, but is wanting something sweet and has tried fruit pastilles, polo mints etc but says they have a funny taste. Any suggestions that people can give me would be much appreciated, thanks
    Former Member
  • Trudy jayne's blog
    Confused .....do i or do i not have cancer ????
    hi , i am at present attending two different hospitals as i was diagnosed with follicular lymphoma 6 weeks ago,both these hospitals have told me different things regarding the enlarged auxillary nodes i have ,which is pretty confusing in its self. i earlier had an enlarged lymph node removed from my groin which is where the diagnosis of follicular lymphoma came from .how ever i received this letter yesterday morning which has really puzzled me and left me quite unsure of what is to happen next i...
    Former Member
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