Day 1 - The Waiting Game

1 minute read time.
Hi, This is my first blog as I only joined the site today. I will start with a bit of history. Last June my husband was diagnosed with Bladder Cancer. Fortunately one dose of chemo and surgery appeared to sort the problem and his checks have been clear since Feb. His next one is due in August so we have our fingers crossed! In April of this year my Mum was diagnosed with Small Cell Lung Cancer and is currently undergoing chem but has had numerous complications. In Feb, I went to my gp with abdominal pain and was sent for an ultrasound. This showed a cyst on my ovary of 4cm. No action was taken just a call back for a repeat scan in June. Finally had my second scan 2 weeks ago and the cyst had changed. There is now three lumps all on top of one another on my ovary and they all have a blood supply. The sonographer suggested I get the results from my gp and possibly be referred. Yesterday I saw gp and he is concerned it is cancer and has referred me under the two week rule. I also need to go and have a CA125 blood test tomorrow. The hospital rang this morning and my consultant appointment is next Wednesday. I know to most of you it sounds like I am jumping the gun but I have many of the "symptoms" of ovarian cancer and an increased risk because of endometriosis (gp ruled out flare up of endometriosis yesterday) So, here I sit at my mum's house (have moved in to care for her) whilst my husband and children are back at home, terrified of what is in store for me. Guilty to think I may not be able to care for my mum if I end up having a hysterectomy. Scared of what will happen to my beautiful children. Angry that this couldn't have waited to surface until after my poor mum loses her battle. God - what a mess!
Anonymous
  • FormerMember
    FormerMember

    Hi Claire,

    I am also a bit of a newbie to the site, but hopefully you will, as I did, find faith and hope and inspiration from the people on here. We are all here to support you when the going gets rough and talk about the things that no-one else wants to. I'm so sorry to hear what a tough run you are having at the moment, after such a good outcome with our other half. I know everyone will tell you to be positive, but really try and focus on the good things and hope for the best outcomes. I am sure a positive outlook can only help. We are all here however .... through the good and especially the bad.

    very best wishes

    T x

  • FormerMember
    FormerMember

    I sit here thinking about my own set of problems feeling a bit sorry for myself then I read your story and realised how lucky I am. I realy hope and pray that everything sorts out for you without more problems my leukeamia pales into nothing in comparison.

    All the Very very best to you and your family

  • FormerMember
    FormerMember

    Thank you for your kind words of support. Today has been a bit tough as I went into work and just couldn't keep it together. Got sent home and decided to go and share the news with my brother. I felt a bit better after a good cry and a hug.

    Tomorrow Mum is taking us all to Butlins for the weekend. She is so excited, it will be the first time we have all holidayed together since we were little. I have arranged for my Auntie and Uncle and Great Nan to come too - but Mum has no idea, so hopefully it will be a lovely surprise for her!

    Will be trying my hardest to put my worries aside and have fun!

    Thanks again for your support.

    Claire

    x

  • FormerMember
    FormerMember

    Dear Claire

    How much bad luck can one person have. You must try to remain positive, i am convinced it really does help in this battle. Anyway i hope what i have to say may help you. My Mum is aged 87. She is AMAZING! still does all her own housework, her garden (digging, planting mowing etc) shopping. She lives alone and is very independant. Last April 2008 she was diagnosed with stage 4 Ovarian Cancer. Right, this is the important bit for you..... She started off her treatment with 6 months of chemotherapy @ 3 weekly intervals (Carboplatin). She tolerated this very well - she was quite fatigued, suffered a bit of a loss of appetite but still managed to eat nutritious meals. Througout the 6 month she still carried on with all her ususal chores. She then had her operation in January 2009. After her op, bearing in mind her age, she was absolutely fine, sore and a bit weary but still able to potter around, If your news is not the best ask if you can have your treatment this way around, obviously be guided by your consultant. Mum was put on the Chorus trial at the outset and this is why she could have her treatment this way round. Its easy for me to say but do try to be strong. I'm sure you will be able to spend time with your Mum. If she needs driving around, social services and the hospital,  have organised transport for Mum to take her to appointments. There is a way around everything and lots of support out there. I will think of you and wish you all the best in the world to you and your Mum xxx

    PS Just wanted to add Mum is being treated at the Christie Manchester, they treat her like a Queen she loves the attention, Thank you all at the Christie!