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In fact, I'm not sure I am still. But I am a sad, frustrated, Mum of a beautiful 13 yr old with a (Insert your own swear-word here) brain tumour! (Astrocytoma)
At the moment, we are in the situation where my daughter has had x3** ops over the summer holiday - non of which have actually helped her - she has recovered well from them so is fortunate enough to be well enough to go to school and I return to work. However, I find this has left me screaming on the inside. Because she is well and in school...
As the new site seems to have totally screwed up my Forum on Mantle Cell Lymphoma which had a number of people following. I am considering turning it into a Blog, but I am not sure that it will be worth while.
It would be good to hear comments from all the people who posted comments on the original forum to see what they think, as it would be good to stay in touch.
Dave
Hi Be on the lookout for an e-mail from Lady Faith Mabou, Who would like to be your new friend and show you something "good"
These people didn't take long to find our new site,
I have forwarded the email to Thomas and deletet it
Love Teri
It's started coming out today 14 days from the chemo like they said not sure what to do am scared I really don't want to shave it but don't want it coming out in clumps decisions decisions. My head is burning feels like evry pore is on fire.
Can't hide it from the general public anymore, have also got odd little lumps on the reconstructed breast just tiny like little peas will have to ring the breast nurse to see what to do.
good morning everyone ,i have just joined the head and neck group to be with fellow head and neck patients please get in touch with me for chats
well its being two weeks back at work , some people know what to say and some are justed shocked , i keep telling them its just a litttle problem i have , i will get over it and they cant believe my attitude or resilience.. well thats life, chemo not very good keeping me up all night when i have had it done , only two more course`s left then the old box browing trick again that only hurts when they put the tripod up lol catch you all later
Well here we are on day 8, his chemo finished yesterday after 5 days. Still no better he still has diarrhoea and his temp still spiking on a regular basis.
The Consultant now thinks yhat perhaps it may have been the chemothat is causing the high temp so will wait for 24 hours to see if it stays down if not another antibiotic will be added
Still no result on his liver scan
Teri
My Dad had an appointment with the oncologist today and still nothing is offered. He did not seem keen to refer him to a homeapathic doctor and reluctantly offered him a blood transfusion to give him a temporary boost
Still no info and no clear diagnosis even though from the first appointment i felt that he was not going to offer him anything.
How can you do that to another human being, not even offer them any hope, or even the truth so that they can get their head around it and do the things they...
Hi Mummy
Things are such mess, and I dont know how to make it all right. Daddy has a go at James whenever Alison is round. He had a go at him the other night for chopping the tomatoes the wrong way, just because he and Alison like them quartered. It was pathetic and Kay and I said to James to keep calm and let it go over the top of his head. I think James would be able to do that if Daddy stopped teating him like a 5 year old and started treating him like he is 21 when she is around. Aparently things...
The past 2 weeks have been so very very hard. Dad had gone into our local hospice on 24 August and we were called in the following Monday as they suspected that we were losing Dad, but bless his heart he wasn't ready to leave this world until the following Saturday (although both Mum and i had spent 5 days and 3 nights by his side) towards the end of the week we found staying with him just unbearable, we all left on the Friday night and luckily Mum and my brother had just walked back into the hospice...
