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so, after 6 months of nagging the royal marsden finally referred me to st barts, i had my consultation and they are willing to treat me using IPO chemo
trouble is this only has at most a 20% CR rate, which is i must admit more than i have at the mo,
they willing to start treatment in a weeks time, which is very fast, and slightly annoying that the RM have toyed with me for. 6 months,
so do i try it knowing it may mean no quality end of life.
My ode this week is partly in respect for the book, The C Word, which I have been reading in anticipation of Sheridan Smith’s drama adaptation of the part. I feel very close, like this was my story too, yet I feel a little guilty that I survived it. But aside from the use of humour as a coping mechanism (and now that I am officially an old bag!), it is the refusal to believe in the fatal possibilities that I recognise best…
Let's just whack the key words in Google,
And change how...
This week I was honoured to have one of my poems printed on the new Macmillan carriers and I wanted to do that because I think the online community does such a wonderful job!
It just seems that as fast as I get one thing sorted, it all goes wrong again. So copy letter sent to Locum Onc.
Dear Doctor ???????
First of all thank you for meeting us last week, and being frank with us. Also thank you for putting a number of items in motion for us, it is much appreciated. It also helped Denise's morale. Portocath booked 5th May, thanks.
Unfortunately, the tissue viability did not really work out, as was passed to the district nurses to deal with. Who have yet to provide a...
After I was first diagnosed with prostate cancer there was an initial denial, then shock. But now there’s a certain dullness in my life, everything just appears grey and indistinct. There is always something, like my future with cancer, at the back of my mind. This permeates to the surface at regular intervals, and often when I’m least expecting it. The outside world appears far away and not sharp, like a picture which has faded or a photograph out of focus. It does mean that I’m quite easy to please...
· Hosp wanted to change Dens appointment on 24hrs notice, because New onc does not do Tuesdays, but have seen 3 times before on a Tuesday.
· Told on Monday did not matter chemo already ordered for Wednesday. This is prior to blood test and weight check as chemo is weight related. This has never been pre-ordered before. Plus New Onc admitted on previous visits, that she did not know how to order it.
· Re above, was told Chemo would prob change this time anyway, as...
Sing a song of cell change,
They multiplied array,
Four and twenty blackbirds,
Through my lymph-nodes fly,
When my chest was opened,
The birds began to sing,
Isn't that a dainty dish,
To try to do me in….
I wish we could have simplified the jargon
-my diagnosis was less of a rhyme,
ER diffuse positive
PR negative
Ki-67 15% positive
HER +++
Highly differentiated
Ductal carcinoma
pT2 pN2a (5/23) MO
Stage IIIa
It all seems like Greek to me -no wonder we need to share a smile and a little...
still not sure how to work this! I am totally with being in limbo. I have been with my husband for 40 years and I have to shut out all emotions otherwise I couldn't cope. I feel selfish in wanting things to be over but it is hard to watch him. He is carrying on doing as much as he can normally but eating for him is awful. We have friends coming this afternoon but what would have once been a happy lunch will now never be the same again. He is having a stent fitted this week and I fear he is putting...
i cant get a flipping break from this dam disease, not one smegging day, i was diagnosed in july 2012, with this oh so treatable disease, oh yes my tumors has dies, even become undetctable to known scans, but my tumor markers which come down during chemo, start rising the minute chemo stops, never below ten, never a day of remission, not even one in nearly three years, even people that have died of this disease get a few months break.
so we thought the when we were called to have surgery to remove...
Hi guys I had kept away from this site for most of the last 6 months. I guess while it looked like Mimi was in remission, out of sight out of mind.
On Monday we discovered that Mimi's count was on the rise a little. 3 months ago it was down as low as 14 now its 51, not the dizzy heights of the 11000 at the height of her illness but still a little worrying.
Were hoping its just a blip as in all other respects she is in rude health.
So now we are waiting for a scan.
Do any of you know if emotional...
