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Visited mum today, took the kids who all made her feel loved with lots of hugs and hastily drawn pictures - flowers from my daughter and 'The sun with legs that walk' (?) given to her by my four year old. She loves seeing them all, even my 13 year old was less 'uggish' than his usual self.
We didn't stay long, she gets tired and also gets a bit circular with her conversation, about an hour and a half maximum for her at the moment. She hates anyone knowing she has Alzheimer's and...
She is, in her own words the other day when I was trying to convince her to have a recliner to help her increasingly swollen legs - 'Cussed awkward'.
'I know I'm being cussed awkward, but I'm not having one of those chairs, they're for old people'.
She's 77.
Trying to deal with my mum and pinpoint problems is like trying to figure out how to 'remove' puzzle pieces so you can pick apart one picture from the other. She has dementia, depression, high blood pressure...
I am too scared to go into the room…..if I kicked the door too hard, it would either come back at me twice as hard or just kept going round and then send me flying into the room….splat… I need to stay upright for now!
Thursday was a really BAD day…..to come out of hospital after a 6 hour regular check up appointment to news that a friend has committed suicide, aged 41…..why they call it the icing on the cake, there was nothing sweet about it…..sorry for doom but I have to get...
well I'm on count down now , my admission letter arrived this morning so at least I don't have to wait over the long weekend, I'm going in for surgery on 20th June - 18 days and counting, At last I have a time frame , I can sort out work, tidy the house and organise my sky + ( very important)
one thing I'm not too thrilled about is that the hospital I'm going to has a system where everyone having surgery that day goes to the surgical admission unit then to theatre and then they are...
1st June
Yes I think that as an infant I had been wrongly named since Jonah is more apt especially for this part of my life. Almost from the start of in the Day Ward (09.39) did things go wrong. Firstly my drugs were not ready since I had had an afternoon slot yesterday for blood tests and a consultation, which meant that the prescription was not sent to Pharmacy until this morning. Then secondly it appeared that my PICC line was blocked whilst the nurse attempted to flush it. This was resolved...
just 6 weeks ago my life was normal, I went to work, texted my friends , spoke to my daughter and watched TV in the evening unaware that my whole world was just about to be turned upside down, My routine mamagram was the next day - no worries it wasn't my first and the only reason I wasn't really looking forward to it was because the radiographer at the last one had been less than pleasent but never mind it was only 5 minutes and then forget it for 3 years, ... move forward 3 weeeks and I'm sitting...
Well after a fbusy day at work, chemo day beings.
I am receiving Carboplatin only.
I in the chemo until for just under 2 hours, but wired up to the drop for about 45 mins only.
The nurses were lovely, the atmosphere was somewhat nice, not somber as you might think, and i came out of the whole experience feeling a lot more positive.
I know the chemo i am having mgiht not do anything as the mucinous carcinoma doesnt respond well, i know they think its from the gut, and im receiving ovarian...
Hey all, Hope you are all as well as possibly can be.........
Its been a busy week, as you know I had an endoscopy last Wednesday and they biopsies a Polp they found.
As you all probably guessed by now im a worrier! I worry so much I scare myself sometimes!.
Anyway I had a brilliant weekend away for a friends hen weekend, which was fantastic, no poorly heads either which is a first, but was so nice to get away from it all and just be me.
Came home Sunday and had a bit of an emotional evening...
So that Invitation comes through the post again: Wear a Gown, Don’t eat beforehand, no jewellery, will be given pints to drink when get there.
Hoorah! Not had that invite since August, so Little My or Cinderella as she is now known in certain quarters, put on her ballgown and plastic tiara and I drove off in her pumkin carriage for her cocktail party and hopefully dinner cos it’s a long time with no food….
Off she goes on the long journey to nice little cancer hospital in the...
Well I think I have had a visit from the fatigue fairy, first day back to work yesterday did 3 hours and it was ok, 5 hours today and came home knackered and went to bed for 3 hours dozing:((
Hope its not going to be like this everyday
