1st June
Yes I think that as an infant I had been wrongly named since Jonah is more apt especially for this part of my life. Almost from the start of in the Day Ward (09.39) did things go wrong. Firstly my drugs were not ready since I had had an afternoon slot yesterday for blood tests and a consultation, which meant that the prescription was not sent to Pharmacy until this morning. Then secondly it appeared that my PICC line was blocked whilst the nurse attempted to flush it. This was resolved when the PICC nurse came and finally got it flowing through. Once hooked up to the Oxilaplatin I mentioned to the sister that my arm was still sore from the first infusion through a cannula in my forearm a month ago and to which the doctor yesterday said it was Phlebitis. The whole area is inflamed and very sore when touched or exposed to cold. Closer inspection is suggesting that there may have been a leak of drugs through my vein into the surrounding tissue and that dependant on which drug it was (5FU or Oxilaplatin) things would either settle down with medication in the first instance or potentially result in tissue damage in the second. So at 15.15 when the "In House treatment" was complete and after being hooked up to my portable canister I was packed off with steroid cream and anti inflammatory drugs in an attempt to ease the inflamed arm. Yes it is a 6 hour job so the whole day is basically written off.
Back at home I'm already feeling the tingling in the throat and hands when touching anything cold and my legs are cramping up but otherwise I'm fine
I think that next time I will take a rabbits paw, horse shoe and Graham Duckmanton since he is the luckiest man I know. Anyway on the plus side in 48 hours my treatment will be a quarter of the way there. 3 down 9 to go.
