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Hi Everyone, We read so many negatives I wanted to share a positive. I have had Lung cancer diagnosed September 13. Prognosis February 15 plus or minus?.
I had the usual plat chemo, two lots followed by 30 days radiation and was advised things were deteriating , and ended up hospitalised with pneumonia and collapsed lung. Things were looking grim when the Oncologist said he was really pleased, they had found the genetic make up of my cancer suited treatment with Tarceva. He was very positive however...
Well its been over two week since i was given hope again that i can achieve an NED status, but this time unlike other times i have heard no word from the surgeon, which in my past experiance is very rare and a tad concerning, as usually i would of had an outpatient appointment, discussec the op and set a date, not this time.
does this mean that its been decidec that its not worth operating on ky tiny tumor?,
in the last three years since diagnosis time has frozen for my wife and I while the world...
My parkinsons aside, I became aware something was not right early in 2004 because eI was losing interest and becoming generally apathetic about life in general even walking arounf car boot sales which I normally love doing.
Of course I was blaming my parkinsons unaware something darker was going on. I felt that everything ws an effort even caring for my daughter and looking back on it people noticed that my housekeeping was slipping and I was becoming more isolated.
When I started turning a shade...
January 18th, it is ten years since I went in to hospital...
I remember the white,
Crisp snow,
Starched sheet,
The dark of the night,
Defeat...
The bare all,
The recall,
The hair fall,
(The long hall)
The pain sharp yet bright,
Spilled drinks,
Silk pyjamas,
The bandages tight,
And going bananas...
Isolation,
Creation,
Mutation,
Foundation.
The treatment weeks were like a black hole I fell deeper and deeper in to. The day I had my first operation it snowed and then the lump...
Thanks for reading my 1st post as I begin fighting for proper consequences for disability-related discrimination!
I'd like my blog and my campaign that it's linked to to expose what has been, for me, the most horrible thing of my tumour-experience - the way I am often treated now my tumours have made me "dis-abled" - what a lovely word!
I now work as a freelance musician which I really enjoy but which can be exhausting, particularly with the enormous fatigue which has affected...
"Sorry, but this is probably a sentence no Doctor wants to hear. I think there is something wrong with one of my testicles".
With this jovial utterance my typical testicular cancer (TC) story begins.
I entered the doctor's room already convinced I had TC, though he kindly explained that there were many reasons for lumps and bumps on testicles; but his reassuring words were less forthcoming after the physical examination itself. Off to hospital I would go. An emergency urology appointment...
Well after last weeks joy of finding out that my germ cell cancer hd a chance to be cured, ok a slim one with with surgery to my lungs, but still a chance
Now usually when the royal marsden refer me to the brompton in the chance of a cure they are quick and swift, this time no news apart from a reply from my surgeons secretary that they recieved the letter and had ask for images,which is the usual polite way of saying we cant help you
as usual my clinical nurse is away from the trust and as usual...
Today is day 3 of the reduced dexamethasone and he is slowly slowly starting to calm down. He is still utterly confused but not so manic angry and agitated. I went to see my gp yesterday he phoned the local hospice and asked them to contact me regarding help and support so hopefully help is here at last.
There was no reasoning with my husband, I thought they had understood what I had explained about what was happening to him, but no all I could see were faces struggling not to look too pissed off as Karl raged and let no one else speak during the whole appointment. When I left the office I asked the oncologist if she found that exhausting she said yes - he had only been there 20 minutes. she said I needed to slowly reduce the dexamethasone so we could have a more productive appointment. I asked her...
Over the course of that day and the next I realised the extent of the changes in my husband. By the Monday he was exhibiting borderline psychotic behaviour. He was manic angry confused and controlling and I do not mean a little. I was in no way prepared for this. I have one question? Why didn't someone warn me of the potential side effects of a high dose of dexamethasone. On the upside trying to find out what was going on led me to this site.
Tuesday morning first appointment with the oncologist...
