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I had offered to drive my mum to a hospital appointment as parking was always a nightmare. If we could find a spot then I'd come in with her, if not then I'd just drive round for a while and she would just call me when she was done. She was getting the results of a scan due to her complaining of a persistent pulled muscle in her back. It seemed luck was on our side that sunny December morning, we parked straight away.
Mum and I were friends, true friends. We worked together, socialised...
Hello all. I've just made the decision to go for Prophylactic Intracranial RT, after a lot of research and soul searching. One of the first things I wanted to know was about other's experiences of it - and I found that nobody has written anything about it (that I can find anyhow) on this site - nor anywhere else, for that matter.
Let's abbreviate the long title to PICRT, since I really can't keep typing the whole lot - and you won't want to keep reading it.....
PICRT is...
With Victoria Wood having been such an inspiration for me and another example of someone who has gone too soon, as I come down to earth from my second holiday of a lifetime I am forced to think about the bucket list…
Having been given the fatal diagnosis and survived I find myself, and others, wondering what to do about it! Never a fan of doing things just to tick them off, I enjoy the routine of my job, the love of my family and always a new blouse -damn that middle class upbringing! But...
The night before the 2nd course of Chemotherapy..
The last 3 weeks have flown by for me, not so much for Mum. Her immune system took a heavy blow for her 1st course of Chemo. She felt completely knocked out for 9 days. We took her to the Hospital to get extra injections and tablets due to her very low White Blood Cell count. She couldn't walk 15 minutes to the shop without feeling knackered. On the 10th day it was like someone had turned the light on, she was back to her normal self and even attended...
One late afternoon in April, through the walls of my little isolation chamber, I learned that the PET scan that will help stage my lymphoma would be delayed - there was something wrong with the scanner, and they would have to turn the whole thing off and on again. By this point, I was convinced they had forgotten me, as it had been more than an hour since I received my shot of radioactive tracers, but they eventually popped in to let me know the bad (there's something wrong) and good (but we've fixed...
I've started a blog about early stage breast cancer which I am being treated for. I have been extremely lucky and don't need chemo, but I think all of us, at every stage need to read something cheerful sometimes, and that's what the blog hopes to achieve, a bit of light relief. It's at www.aslongasthereareambulances.com. All the best x
Chemo began in February 2014
Ray was so very courageous and strong, always believing he would beat the cancer and get well again.
He tolerated all the chemo playing golf two or three times every week but his weight continued to drop and he looked so sad and vulnerable. His golf partners were amazed that he was still able to play 18 holes but it did take its toll when he came home in the evening, often too tired to eat anything and feeling sick.
my sadness was so severe I found myself crying all the...
Still no appointment with my oncologist.
I phoned the specialist nurse on Thursday who informed me nothing was 'on the system' and it takes one to two weeks for an appointment.
Not quite what I was told at my appointment the previous Friday.
I'm finding the waiting incredibly frustrating.
After my initial diagnosis (over a month ago) friends and family are asking 'when is your treatment starting'.
Getting my scans done was very quick and yet now all the information...
I feel perhaps this is not appropriate as I am starting the blog at the end rather than the beginning.
In September 2013 I was happy, just been on a Mediterranean cruise and life seemed fine. One little worry that Ray seemed to have lost a lot of weight but he assured us he was fine.
October he went for a flu jab and I asked him to tell Doctor about the weight loss. He did but it was not followed up.
Then he got a chest infection and this time GP gave forms for blood test and x-Ray.
Two days later...
Today's blog is brought to you by the word remission and the number 13.
Sod that superstition nonsense, I've just had a cracking Friday the 13th.
Had always hoped - and in truth always expected - that I'd reach the point of remission, but it's still a fantastic feeling to hear the consultant say those magic words.
It's important to note what remission means, and what it doesn't mean.
The main thing is that it's not saying I'm cured. In fact Mantle Cell Lymphoma...
