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So 6 cycles of Folfox later......
And the chemo has done nothing , the tumors have grown in my liver but no new ones found apart from .. they are looking at a suspect object in my spine. that wasn't in previous scans
I am devastated as apart from the chemo I feel so well and the pain I had in my side had subsided. My oncologist was floored as he also was sure that there had been a response. I have no back pain and plenty of energy - also my liver and other organs are operating normally - it...
Its been over 6 months now since we lost mum, I've not posted for ages, but today is mum's birthday. I took some flowers to the cemetery yesterday, and shed a few tears. I'm still numb, think about mom every day, though just trying to get on with things as best I can. I still feel wierd around 7pm, that was the time I used to ring her. Miss her so much. I've got so much I could tell her, mainly about the boys. My eldest now has a part time job, a girlfriend, has had a brush with the law...
The last two months have been so chaotic that I have had to remind myself that the reason for all this mess in my life is because I’m fighting for my life. This isn’t just a quick stop in hospital and it will all go away illness... if only!!
Getting to the point of being able to have my SCT in October was a challenge I quite happily took on and when I finally heard the words were going ahead with it, I felt like finally I could move on, breathe a little bit better. Yes I went into panic...
Had my monthly chemo oncologist appointment today and it was the worse news I have had for 6 months
My white blood cell count dropped and is just above the abnormal range at 1.66 but I can still go on chemo next week but it looks like I will have to give it 30 days in between cycles rather than 23.
Platelets were fine so just need to keep fighting and have lots of rest
Last night I was kept awake ....something made me laugh for longer than I have in ages and it didn’t involve my story.
We were settling to sleep when lovely husband says ‘There’s something weird on my lower back, feels like a scab or something’
After much shuffling around he decided to get up and nip to check it out in the bathroom mirror.
I was almost asleep when the bedroom light went on and an anxious voice said ‘ Can you look, I really don’t know what it is and if I scratch...
I have to have ECX chemo with three cycles. The first cycle was tough - much harder than I expected. The first two days were ok then three days when all I could do was lie in bed and wait for it to pass. Nausea was bearable thanks to the meds. Eating little and often helped and eating Rich Tea biscuits and Polo mints! The CNS was great and advised me to stop the Capecitabine for a couple of days to let my body recover
After a week I started to feel better and was able to have a walk every day.
...5 weeks of radiotherapy started yesterday and today was first of 5 weekly doses of chemotherapy.
Each of these unknown new experiences is very daunting so I presented myself this morning with slightly wobbly legs.
As with all my experiences since this journey began, everyone I met was just lovely. The nurse who I was to spend most of the day with was great and explained everything she was about to do. She walked away to get various bits and bobs and promptly went flying over a very large yellow bucket...
Thank you for the support and advice. I'm feeling much stronger now and still another week to recover before next chemotherapy. I have taken BCD oil for somet months now as it really helps with MS. I have read that it can help with cancer too and it's well worth a try.
We must all be strong and I'm sure we will get though this. It's very hard but you are never on you own on this bumpy road.There is so much to live for and so much to look forward to.
Hi everyone.anyone eh!!.My so loved sis died in June this year 2018. Comfortably in St Leonard's hospital York.What an oasis in the life that all there either facing final time of life or in for respite care.Sis did manage to come home for a while and I had time with her as she slowly slept and held my hand. Finally the care needed was provided.After the disastrous time previously I was dreading needing help but this time it was good.We had night sitters and wonderful Macmillan nurses,oh the care...
After feeling so positive when I started chemotherapy, I was determined to keep this up. During the Taxol treatment I managed to stay reasonably upbeat apart from when I had a two week break because my bloods were wrong. I admit the side effects weren't pleasant but once I'd got used to feeling permanently tired and nauseous at times I think that I was very lucky when I hear of other people's experiences. I did have lots of tummy problems but usually medication solved my problems. I've also had various...
