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……fun and frolics! OK, who forgot to pack the fun and frolics? I can do the odd funless day with no frolics but not two weeks worth thank you very much! It all started (surprisingly enough) about two weeks ago. After a chat with Dr Socks we all agreed that the Red Devils needed to be sacked as they appear to have done what little good they are capable of. Next question, what to replace them with. The pin the tail on the donkey game came down with the tail pinned in Taxotere...
In the grand scheme of things it was nothing, but when hot, tired and busy it was becoming the straw that broke the camel's back!
Yesterday morning I awoke to find that the insect bite on my arm, received whilst doing the Race, looked like a large archery board regardless of the antibiotic cream I had been using. So it was a trip to the docs morning surgery (no appointment necessary) where I had to sit with the great unwashed for almost 2 hours.
After receiving my oral antibiotics I went...
How do you answer the question "How are you today?" when things have gotten so far from normal. Do you just simple smile and say ok, when deep down you are far from being ok. Or not too bad, is that more appropriate. Seems like these words and phrases are made for when life is peaches and roses, and when your worries are what your going to have for dinner and is your washing going to dry in time, or that your feet or a little sore because you have been rushing around all day.Yet now the standard...
I haven't been able to reply to everyone individually who has commented on my blog posts and has sent good wishes.
I have found, and I am still finding, writing this blog to be a real help to me. It may sound strange but just writing about what we are going through... what Sally is going through... is so helpful to me, but for some reason it is. I find that in having to think about our experiences I also have to try to put them into some kind of perspective and this seems to help me handle what...
why.
well since they initially found the cancer tumours and the baloon went up, there followed all the hustle and bustle of operations and rad treatment (2007). then there followed the start of checks and prosthetics, and here i am in 2010 still a work in progress, and i still cant get some of the answers i need and want, or dont want . ( trust me to get a not too common problem ). I seem to be on the back burner waiting for one thing or another ( waiting patiently ) still on the long road. anyway...
I haven't visited the community for ages. This is because since 22 May I was back and forth to the oncology ward at York Hospital - that is until 4 June.
Keith had to go in for pain control; the palliative care team were really good, and after trial & error managed to find a suitable cocktail of drugs administered by syringe driver into the abdomen. Around 30 May he began to vomit brown gunge - so they put a drain down his nose and into his stomach. At least that stopped the vomiting.
...The past few days has been quiet on the blog because we managed to get a few days away in the caravan. These days are a great way for us to relax and recharge our batteries ready for the next cycle of fun!
Sal went to the hospital ths morning for her pre-chemo blood test. Her Hickman line wouldn't allow the taking of blood so they had to get it via a vein again. This time they didn't have any problem though and all went well.
So the next cycle has started. It seems to be settling down to...
Thought i would let you all know that i have just had a phone call from my hospital in London (UCHL) with the news that i am to scrap the start of my chemo on Friday and await a phone call from a Professor in abdominal surgery who has looked at my scans/images and has said that he could probably remove my massive tumour. I would then have some chemo later on. He is going to phone me sometime next week to arrange a meeting to chat about everyhing and then arrange admission for me. My goodness, i didnt...
Thought i would let you all know that i have just had a phone call from my hospital in London (UCHL) with the news that i am to scrap the start of my chemo on Friday and await a phone call from a Professor in abdominal surgery who has looked at my scans/images and has said that he could probably remove my massive tumour. I would then have some chemo later on. He is going to phone me sometime next week to arrange a meeting to chat about everyhing and then arrange admission for me. My goodness, i didnt...
Anyone got experience or an opinion about Active Surveillance? Would like to hear all comments even if you have no real time experience of it.
The reason being that I was on the 10.8 Zoladex and a 3 monthly Zometa for over 3 years then after much research I decided to have some time without their drugs.
I have advanced PCa stage 4 gleason 9 (at diagnosis feb 2006)
Keith
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